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Don MacLeod's Discussions

Taxes

Started this discussion. Last reply by Don MacLeod Feb 17, 2013. 2 Replies

I understand others have it worse but I wish our Government did a better job of acknowledging that the cost of living for a sick person is different than the cost of living for a healthy person.Other…Continue

Tags: cost of living, Taxes, Obamacare

"As Needed"

Started this discussion. Last reply by Don MacLeod Feb 18, 2013. 14 Replies

My wife cleaned out our medicine cabinet & turned in some popular prescriptions to our police department's drug disposal program. The volume surprised me.I know pain & make a distinction…Continue

Tags: marijuana, Marinol

Expecting milk from a dry cow?

Started this discussion. Last reply by K2 Nov 29, 2012. 9 Replies

 Maybe I'm wrong & there was some box I failed to check but I don't recall "subscribing" to be solicited by the Colon Cancer Alliance (CCA). Just opting out of emailed donation solicitations…Continue

 

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Latest Activity

Don MacLeod updated their profile
May 21
Don MacLeod replied to Jeannie Moore's discussion With sad and heavy heart, I share the news our CCA buddy and friend Michelle Teczar has died
Sep 16, 2013
Don MacLeod posted a video

Mount Willard

12 Aug 2013 2 hours 50 minutes round trip. Crossing water for Karen is a big deal. She gets vertigo from the water moving past the rocks. Past bus loads of c...
Aug 19, 2013
Don MacLeod posted videos
Aug 9, 2013

Profile Information

First Name
Don
Last Name
MacLeod
City
Holliston
US State or Territory
Massachusetts
How did you hear about My CCA Support [select all that apply]
Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
No
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 3
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Vectibix (Panitumumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Liver 3 tumors (3/5/07)
6x3cm RFA'ed with multi 3cm passes
1.3x1.1cm RFA'ed to 3cm
12x12mm RFA'ed to 3cm

(5/13/12)
6.4 x 4.7 cm
5.6 x 4.5 cm
5.3 x 4.1 cm

lung nodule
8mm (8/5/09)
18 x 11mm (5/1/12)
About Me
One Monday morning a driver fell asleep and hit my truck head on. It messed my guts up… Until...

3/24/05 Discovery of a unknown colon tumor, Sigmoid Colostomy and FOLFOX. (Sigmoid Adenocarinoma, 5.9x5.0x2cm, Moderately Differentiated, T3N1M0) With shadows on liver metastases couldn't be ruled out.
3/05/07 Stage IV Liver metastases with a mid-operation cancelled resection and the RFA consolation prize.
3/10/08 New liver tumor activity that led to palliative Xeloda which for the moment seems to have my tumors in check. http://www.youtube.com/watch?v=fy24PE8dPK4
3/11/09 Today’s CT scan found my liver tumors, with a little growth but nothing else. We've added Avastin to my Xeloda.
3/24/10 starts my sixth year with cancer. At the moment I am between treatments. I am realizing that getting to the milestone goal of five years gave me some protective comfort from thinking too much about what’s next. I finally put in my papers for a disability retirement & gained approval on 6 May 2010.
3/29/11 Completed 12 cycles of FOLFIRI. Liver tumors have shrunk so we're taking a needed break, will rescan 5/24/11 and then plan the next phase of treatment.
3/24/2012 Today starts our 8th year dealing with cancer. I'm still receiving maintenance chemo of Folfiri & Erbitux every other week.
3/24/2013 Last scan found a little growth in some tumors & reduction in others. Overall finding was stable. So I'm getting a treatment break. Too many of my damaged stage IV peers were heartlessly driven from this site. From my prospective, without their gifted voices, CCA no longer holds much relevance.
3/25/14 Down to Home Hospice care. Morphine gives me 4-6 normal hours a day.

I was never sick with cancer. The diagnosis was a surprise.

I don’t know what is next but I am definitely starting to hate March.

Hold Fast
Don MacLeod

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Comment Wall (6 comments)

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At 5:37pm on July 12, 2013, Jeannie Moore said…

Just checking in Don to see how you are.  I'm here if you need me :)  sending healing thoughts and love,

jeannie

At 12:02pm on January 25, 2013, Jeanne A said…

Hi Don, want to meet me in the chat room?  Or in a private chat?

At 11:46pm on January 16, 2013, Jeanne A said…

Hi Don, Thank you so much for the messages you often send me. Yes, we have both been long-term warriors.  Sounds like you might be down to the bottom of the list of chemos?  I have a few left.  Do you live alone or are you married/partnered?  What are the hardest things for you to do these days?  How bad is your chemo brain?  I'd love to share more info with you.  There aren't so many of us around, surviving this long.  

Big hugs,

Jeanne A

Don MacLeod's Blog

I'm just on a break

Posted on March 1, 2013 at 9:03am 0 Comments

Its Colon Cancer Awareness Month. I'm thinking that CCA may have become too anal to be fully helpful. I believe deletion just demonstrates a contemptuous disregard for people that need help. Being already aware 24/7, maybe it's a good time for me to take a break from CCA's unwelcomed drama. I'll check my messages but I'm going inactive on this site for the month maybe if CCA has to step up & carry their own water they'll gain a needed insight so they can more productively engage the…

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healthcare cost lullaby

Posted on February 27, 2013 at 9:33am 1 Comment

Home with the pump.  Wish there was a safe way to just to stay in bed & dream anyway the day.  Empty stomach doesn't like the coffee.  Breakfast might help or hurt.   I've got some bookkeeping to do  with the goal of better understanding  my healthcare cost.  That might send me back to bed.

Hold Fast
Don Macleod

SIS BOOM CURE!

Posted on February 19, 2013 at 7:23pm 0 Comments

http://www.youtube.com/watch?feature=player_detailpage&v=_rJsNC4xQW4

A facebook friend ask me to "Like" the above link. Sorry, I'm just saddened by all the cheerleader attention "CURE" gets. Can't help but feel that more of my friends might still be around if some thought were put into the less fashionable but more functional goal of managing & living better with Stage IV…

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Keeping count

Posted on January 31, 2013 at 1:30pm 0 Comments

Home & off the pump. As of today my cancer has seen.

7 Doses of Oxaliplatin (bad reaction)
40 Doses of Irinotecan/CPT-11
84 Doses of 5fu (both forms )
35 Doses of Erbitux
22 Doses of Avastin

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Professor Roger Kamm visualizes sneaky tumor cells with 3-D assay

Posted on January 22, 2013 at 12:13pm 0 Comments

I find the idea that an immune function might facilitate a cancer cells ability to get in where it doesn't belong & increase the odds of metastasis, an advancement in our needed understanding of the fundamentals of a cancer cell's dastardly lifecycle (see link)…

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