Hi Hugh - just checking in to say hi and see how you are.  I don't know if you know, but I came back strictly as a volunteer last October because I missed my peeps so much as well as being a part of something :)

Pop into chat if you can 12-1 EST and say hi - great group of folks.  You always have much to share about not only Maureen's journey but your own as a caregiver.......miss you!

xo love jeannie

Hugh
I really enjoyed our phone conversation this evening.

Thank you for the words, advice and possible scenarios to come down the road, it is greatly appreciated!

If you need to talk sometime and I am not at home my cell is 417-830-6924. I mayhave given it to you already but I can't remember. If I did it is the caregiver brain that needs to be defragged.

My home e-mail is gillendm@suddenlink.net you have yourself a good Thanksgiving. We both have a lot to be thankful for children, grandkids, friends, and some darn good memories of our spouses. 

Dan

Hi Hugh, wow - i love your picture!  Looks like you are looking out remembering good times :)  Are you up to connecting with Dan here on My crc?  He just joined last night for the Caregivers live chat and his wife is coming to the end of her journey.  They've been together 38 years.  I talked to him this morning.  He is so nice.  He would love to email others who know what he is going through.

Some of his friends don't know what to say to him so they stay away.  We talked about sometimes, it's easier to talk with strangers who have been on the same path.....

Here's his page:

http://mycrcconnections.ning.com/profile/DanGillen

 

It's easier for him to sit down at the computer late at night and write emails.  I hope he pops into chat more.

Please do not feel pressure, but I think you will become good friends :)

let me know if you need anything,

jeannie

Thank you my friend for your kind words tonight for me.  I couldn't help but cry and am honored you wrote such kinds words about me.  Having your friendship is a gift.  Thank you - wish you were here - next year!  It was a great party!

thanks pal,

jeannie

Hi Hugh,

You know I am struggling as to who is really considered the primary dr.  I figure it’s the oncologist rather than the family dr.  The oncologist just throws meds at Jerry rather than finding out exactly what he’s treating. This has been going on since November.  I got frustrated and told Jerry we were going to go to the gastric dr and see if we could get to the bottom of it.  We saw the dr who did his original colonoscopy before Christmas and he didn’t get scopes done until the first of the year.  I have not become upset with his staff because they won’t listen, return phone calls and the “nurse” called in the wrong meds and then wouldn’t return my phone call when I was questioning it.  We will see the surgeon who removed the tumor on Wednesday.  The oncologist who was on call for our normal one came to see Jerry in the hospital and she suggested a pain management dr so I feel we are on the right track but it’s just not happening fast enough for me and he’s so confused right now. 

We started out in Denton and I wish now we would have gone to MDA at the onset. I think they would have talked Jerry into being more radical with surgery but we try not to think about that. I sure wish I had that magical crystal ball. We have been very pleased with our visits to MDA. We have been twice so far. We stay at the Rotary House so we just have to take the skybridge to his appointments and he can rest in between times if needed.

Hi Hugh, I see you are in Texas. I figured you must know something about MDA by your post earlier. Do you all go to MDA? We are situated between Dallas and Denton off of I35E.

Hi Hugh - thanks for such a caring note to Randy - you have such a way with words. I so appreciate you hanging around for you have much to offer - many folks just want to move on and it's too sad/hard for them to stay here. I respect that. I am most grateful for you for your contributions for as I said before - coming from one who has walked the path is far more comforting and it truly helps them feel less alone.
Hoping you are taking care of you, being gentle with yourself on the tough days and filling up your pie with new activities, new hobbies or just things that bring you joy.
thinking of you,
jeannie

Hi Hugh,
Just wondering how you are doing? I see that you are still offering your wonderful views and advice. I hope that someone is helping you with your grief and that you are coping all right.
I send you a big hug,
Bonnie