Hugh Barr's Friends

  • Dan Gillen
  • Bill Harter
  • Jeanne A
  • Marty Braverman
  • tammy sanders
  • Whidbey Woman
  • Nancy Taylor
  • Tim Burkenbine
  • Steve
  • Martha
  • Joe Metcalf
  • Linda Kaye
  • Jeannie Moore
  • Cyndie
  • BobKat

Hugh Barr's Discussions

Oxaliplatin neuropathy

Started this discussion. Last reply by Hugh Barr Oct 5, 2009. 2 Replies

MD Anderson: colon cancer specialist

Started this discussion. Last reply by Jeannie Moore Aug 30, 2009. 11 Replies

Acupressure Bands

Started this discussion. Last reply by Hugh Barr Jul 30, 2009. 2 Replies

 

Hugh Barr's Page

Latest Activity

Jeannie Moore left a comment for Hugh Barr
"Hi Hugh - just checking in to say hi and see how you are.  I don't know if you know, but I came back strictly as a volunteer last October because I missed my peeps so much as well as being a part of something :) Pop into chat if you can…"
Jan 15, 2013
Hugh Barr replied to Janet Dungan's discussion Body image issues still
"Hi, Janet... well, you've pretty well cataloged the down side... and with the sadness of your mother's situation that's just a topper...  no wonder you're depressed.    Maybe the first thing to taking a deep breath…"
Jun 19, 2012
Hugh Barr replied to Steve Blue's discussion Chemo #25 and counting
"Hi, Steve... my impression from your post is the doc has placed her in the Chronic category, which is a good thing.  Generally, in Stage IV, that means the bad guy has been controlled, which is really good news.  However, our…"
Jun 14, 2012
Hugh Barr replied to Kathy's discussion Ileostomy or Colostomy
"Hi, Kathy... can certainly understand the dilema.  I'm not qualified to gauge the prolapse impact on one or the other - but my wife had both the colostomy and ileostomy procedures.  In her case the ileostomy was done because…"
Jun 7, 2012
Dan Gillen left a comment for Hugh Barr
"HughI really enjoyed our phone conversation this evening. Thank you for the words, advice and possible scenarios to come down the road, it is greatly appreciated! If you need to talk sometime and I am not at home my cell is 417-830-6924. I mayhave…"
Nov 21, 2011

Profile Information

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Texas
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Caregiver

Comment Wall (42 comments)

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At 11:46am on January 15, 2013, Jeannie Moore said…

Hi Hugh - just checking in to say hi and see how you are.  I don't know if you know, but I came back strictly as a volunteer last October because I missed my peeps so much as well as being a part of something :)

Pop into chat if you can 12-1 EST and say hi - great group of folks.  You always have much to share about not only Maureen's journey but your own as a caregiver.......miss you!

xo love jeannie

At 10:01pm on November 21, 2011, Dan Gillen said…

Hugh
I really enjoyed our phone conversation this evening.

Thank you for the words, advice and possible scenarios to come down the road, it is greatly appreciated!

If you need to talk sometime and I am not at home my cell is 417-830-6924. I mayhave given it to you already but I can't remember. If I did it is the caregiver brain that needs to be defragged.

My home e-mail is gillendm@suddenlink.net you have yourself a good Thanksgiving. We both have a lot to be thankful for children, grandkids, friends, and some darn good memories of our spouses. 

Dan



At 3:05pm on November 3, 2011, Jeannie Moore said…

Hi Hugh, wow - i love your picture!  Looks like you are looking out remembering good times :)  Are you up to connecting with Dan here on My crc?  He just joined last night for the Caregivers live chat and his wife is coming to the end of her journey.  They've been together 38 years.  I talked to him this morning.  He is so nice.  He would love to email others who know what he is going through.

Some of his friends don't know what to say to him so they stay away.  We talked about sometimes, it's easier to talk with strangers who have been on the same path.....

Here's his page:

http://mycrcconnections.ning.com/profile/DanGillen

 

It's easier for him to sit down at the computer late at night and write emails.  I hope he pops into chat more.

Please do not feel pressure, but I think you will become good friends :)

let me know if you need anything,

jeannie

At 11:57pm on June 23, 2011, Jeannie Moore said…

Thank you my friend for your kind words tonight for me.  I couldn't help but cry and am honored you wrote such kinds words about me.  Having your friendship is a gift.  Thank you - wish you were here - next year!  It was a great party!

thanks pal,

jeannie

At 7:50pm on January 22, 2011, Beth Reynolds said…

Hi Hugh,

You know I am struggling as to who is really considered the primary dr.  I figure it’s the oncologist rather than the family dr.  The oncologist just throws meds at Jerry rather than finding out exactly what he’s treating. This has been going on since November.  I got frustrated and told Jerry we were going to go to the gastric dr and see if we could get to the bottom of it.  We saw the dr who did his original colonoscopy before Christmas and he didn’t get scopes done until the first of the year.  I have not become upset with his staff because they won’t listen, return phone calls and the “nurse” called in the wrong meds and then wouldn’t return my phone call when I was questioning it.  We will see the surgeon who removed the tumor on Wednesday.  The oncologist who was on call for our normal one came to see Jerry in the hospital and she suggested a pain management dr so I feel we are on the right track but it’s just not happening fast enough for me and he’s so confused right now. 

At 11:16am on November 8, 2010, Beth Reynolds said…
We started out in Denton and I wish now we would have gone to MDA at the onset. I think they would have talked Jerry into being more radical with surgery but we try not to think about that. I sure wish I had that magical crystal ball. We have been very pleased with our visits to MDA. We have been twice so far. We stay at the Rotary House so we just have to take the skybridge to his appointments and he can rest in between times if needed.
At 7:57pm on November 6, 2010, Beth Reynolds said…
Hi Hugh, I see you are in Texas. I figured you must know something about MDA by your post earlier. Do you all go to MDA? We are situated between Dallas and Denton off of I35E.
At 9:43am on August 31, 2010, Jeannie Moore said…
Hi Hugh - thanks for such a caring note to Randy - you have such a way with words. I so appreciate you hanging around for you have much to offer - many folks just want to move on and it's too sad/hard for them to stay here. I respect that. I am most grateful for you for your contributions for as I said before - coming from one who has walked the path is far more comforting and it truly helps them feel less alone.
Hoping you are taking care of you, being gentle with yourself on the tough days and filling up your pie with new activities, new hobbies or just things that bring you joy.
thinking of you,
jeannie
At 3:01pm on August 24, 2010, Bonnie McLean said…
Hi Hugh,
Just wondering how you are doing? I see that you are still offering your wonderful views and advice. I hope that someone is helping you with your grief and that you are coping all right.
I send you a big hug,
Bonnie
At 6:52pm on July 12, 2010, Julie Kay said…
I always get comfort and hope from the loving advice you share on these pages. I have not been on in a while and am so sorry to see that your wife passed away. You have my deepest sympathy. I hope you will continue to offer hope to all of us on this journey called cancer.
 
 
 

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