"GeorgiaChristine: Welcome to CCA. Like you, I am Stage IV with mets to the lungs (still there) and bones (have been treated with cyberknife radiation). While I was officially diagnosed in April 2009, my doctors believe I've…"
An online community for those affected by colorectal cancer.
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Jay Cuetara
- 51, Male
- San Francisco, CA
- United States
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Latest Activity
Jay Cuetara left a comment for BRIAN BEE"Brian, hello. I'd love to talk with you about my experiences to date with dealing with the lung nodules. I still have them, but hey are under control. You can reach me at 415-563-5634 and today I'm available after 9:30 am…"
Randy Henniger left a comment for Jay Cuetara"Hi Jay, I saw you online today and wanted to say HI and find out how your are doing?
Be WELL!
Randy, 26 year CRC survivor
CCA Patient Support Advocate"
Denise DeCarlo left a comment for Jay Cuetara"Hi jay I hope this finds you good. I talked to you awhile back. I forgot whAt treatments you had especially for your spine. Can u please help me and let me know ASAP Thanks denise"
Sue Drost left a comment for Jay Cuetara"Hi Jay,
So good to get to know you on the phone several weeks ago. I've finished my radiation to the bone met and feel so much better. Pain is gone and range of motion is better. I find out Thursday about KRAS status and this will determine…"
"can you please send me your phne number i would like to call you right now if possible."
"Hello Jay. i was diagnosed with Stage 3 colorectal cancer in dec of 2011. I havent had surgery yet to remove the tumor. i just finished treatments of chemo and radiation on the 14 th of March, they were trying to shrink it. i go to my surgeon on the…"
"Thanks for your comment on my page Jay. To say 2011 was a life-altering year for us would be an understatement. We've been so many different areas with this treatment...from an initial plan of local hospital wanting to just do…"
Marilyn Hicks left a comment for Jay Cuetara"Hi Jay,
Thank you for your comment. Thankfully I am not in any treatment at the moment and just had my colonoscopy which they found 3 polyps. All were benign. I also had a good CT scan except for a belly full of scar tissue and a partial small bowel…"
Susan Bohney left a comment for Jay Cuetara"Hi Jay,
My name is Susan. I have been fighting colon cancer since 2004, I am stage 4. I just had a ileostomy and reversal this year. I will have to do the folfir and avastin starting January 5th. I have a concern about side effects. Please tell me…"
"Hi Jay. Congratulations on your few side effects from all of these cocktails, I am very familiar with your chemo regimet. I am currently on Avastin and Erbitux. I took the 5-FU, Oxaplatin and others that I forget at the time. When you think of it…"
Bona Benjamin left a comment for Jay Cuetara"Jay, I have aa tremendous opportunity for you. Where can I reach you?
Bona"
LillianO left a comment for Jay Cuetara"Hi Jay,
I just read your story on CCA - so encouraging!!
I am stage 4 colon cancer with mets to lung and liver.
Originally diagnosed in 2006 with recurrance in 2007 and then mets.
I have been currently receiving oxalipaltin & xeloda, but after 4…"
Jeannie Moore left a comment for Jay Cuetara"hey my friend.........I just read in CURE magazine the other day that green tea may "increase toxicity" of camptosar!!! Have you heard that? Surprised me - I tell everyone to drink a cup a day!
how are you feeling?
jeannie"
Bill Perkoski left a comment for Jay Cuetara"Hi Jay, I have recently diagnosed with Stage III rectal and was wondering where you went for your treatment. Did you also have radiation? Were you taking all of the supplements while you were on your treatment? How far in was your tumor? Any nausea…"
Profile Information
- City
- San Francisco, CA
- Race and Ethnicity [select only one]
- Hispanic (of any race)
- What is your connection to colorectal cancer [select only one]
- Patient/Survivor
- Type of Cancer [select only one]
- Rectal Cancer
- What stage at diagnosed [select only one]
- Stage 4
- Chemotherapy Received
- Fluoroucil (5-FU), Avastin (Bevacizumab), Eloxatin (Oxaliplatin)
- If you have metastases, please note where
- lung and vertebrae
- About Me
- I was diagnosed just over one year ago with Stage IV rectal cancer with metastates to my lungs. I've had the rectal tumor surgically removed and had a temporary ileostomy which has since been reversed. I've had 11 rounds of FOLFIRI with Avastin. I've been incredibly lucky in that I've had very few side effects from the treatment. I'm also using acupuncture, regular exercise and supplements (Vitamin D, Omega 3, mushroom complex, probiotics and chinese herbs) as part of my ongoing treatment.
- Have you read the Community Guidelines under the Community Tab? (required for membership)
- Yes
Comment Wall (23 comments)
- At 12:58pm on December 7, 2012, Randy Henniger said…
Hi Jay, I saw you online today and wanted to say HI and find out how your are doing?
Be WELL!
Randy, 26 year CRC survivor
CCA Patient Support Advocate
- At 8:35pm on July 9, 2012, Denise DeCarlo said…
- Hi jay I hope this finds you good. I talked to you awhile back. I forgot whAt treatments you had especially for your spine. Can u please help me and let me know ASAP Thanks denise
- At 7:32pm on May 1, 2012, Sue Drost said…
Hi Jay,
So good to get to know you on the phone several weeks ago. I've finished my radiation to the bone met and feel so much better. Pain is gone and range of motion is better. I find out Thursday about KRAS status and this will determine next treatment. I've had several tumors in the liver grow a bit, so time for the next weapon! Hope you're well.
Sue
- At 8:58pm on March 22, 2012,
Dawn Marie Tanner said…
can you please send me your phne number i would like to call you right now if possible.
- At 5:05pm on March 22, 2012,
Hello Jay. i was diagnosed with Stage 3 colorectal cancer in dec of 2011. I havent had surgery yet to remove the tumor. i just finished treatments of chemo and radiation on the 14 th of March, they were trying to shrink it. i go to my surgeon on the 27 th of march and he will let me know when i will have surgery to remove the tumor. i have been through lot. i had to have a colostomy done in jan of 2012 due to bowel problems. i am just fighting this cancer one day at a time.
- At 8:59am on February 13, 2012, Jeannie Moore said…
Happy Birthday dear Jay!! I hope you are feeling well and do something for you today! Thanks for all you do for CCA, our members here and for patients in general with you advocacy work! YOU are the gift to us! Hope you have whatever your heart and tummy can handle today!
xo
- At 11:13am on January 12, 2012,
Joseph Hamilton said…
Thanks for your comment on my page Jay. To say 2011 was a life-altering year for us would be an understatement. We've been so many different areas with this treatment...from an initial plan of local hospital wanting to just do emergency surgery, to JHU telling us we'd do radiation, surgery, then chemo, to chemo once they thought they saw liver mets (Which was just noise on the scan), to surgery when they were kind've unsure if the lung spots were mets, back to chemo now that they saw growth in the lung mets (3 months between scans, growth of about 1 cm). The oncologist is optimistic that with her age and past treatment results, she might have a good bit of fight left in her. But I tell you, it's a lot better for me to SEE people on here who've been going on 3-4 years or longer and are also far from the end of their fight. My wife is, at least for now, sticking with LTD from her work so she can stay home with our kids and get as much time with them as she can, just in case her fight doesn't go as well. But something in me just says the next scan HAS to be better, and we're going to have some fun beating this cancer around before it has a chance to suck more life out of us.
- At 3:39am on December 31, 2011, Marilyn Hicks said…
Hi Jay,
Thank you for your comment. Thankfully I am not in any treatment at the moment and just had my colonoscopy which they found 3 polyps. All were benign. I also had a good CT scan except for a belly full of scar tissue and a partial small bowel blockage but other than that, I'm doing good. I wish you well and hope 2012 is a good year for you.
Nice to hear from you,
Marilyn
- At 10:02am on December 27, 2011, Susan Bohney said…
- Hi Jay,
My name is Susan. I have been fighting colon cancer since 2004, I am stage 4. I just had a ileostomy and reversal this year. I will have to do the folfir and avastin starting January 5th. I have a concern about side effects. Please tell me about your experience and what supplements you have taken.
Hope to hear from you soon
Susan Bohney :)
- At 10:55pm on December 22, 2011,
Michael Carver said…
Hi Jay. Congratulations on your few side effects from all of these cocktails, I am very familiar with your chemo regimet. I am currently on Avastin and Erbitux. I took the 5-FU, Oxaplatin and others that I forget at the time. When you think of it check with your Oncologist regarding hearing loss from the Oxaplatin. This is one of the side effects that sneaks up on us. Hopefully you are spared from this because it continued to eat away at my hearing which was too say the least poor before the treatments. That was just a factoid I wanted to share with you. I am interested in what mushrtoom complex you are taking as well as chinese herbs. My Oncologist said that I am in a sweet position as I am no evevidence of the disease. He recommended be to expand my supplemental use and I believe you are in the know of information that I have been sorely looking for. My mets were in the rectum and liver. Right side of liver completely removed, then the lesions attacked the left liver lobe, 2 radio frequencies later they zapped them, cells in the rectum burned to kingdom come. Have a very happy holiday and lets strive for a very healthy New Years for you my warrior.
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