Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains

Stage 4? Let us know who you are!

Started this discussion. Last reply by Sheridan Folger May 20. 194 Replies

Hello everyone, we have had a few new members join this community who are Stage 4.  I know we all like finding those who have cases as similar to our own as possible, to share experiences, etc.  If…Continue

Tags: stage, connect, 4, support


Jeanne A's Page

Latest Activity

Jeanne A left a comment for mitzi
"Mitzi, it's almost time for our 12 noon chat!  I hope you can figure out how to get into the chat room, and can join us.  I'll send you a note from the chat room, and see if you hear a 'ding' when the message comes…"
Jeanne A left a comment for mitzi
"Hi Mitzi, welcome to the cca community! You're right, it IS a positive place. When I found this site several years ago, I felt like I found a lifeline!   I'm also a stage 4 survivor.  I was diagnosed (dx) in Octrober 2005,…"
Joe left a comment for Jeanne A
"Hi Jeanne, Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life…"
Oct 25
Jeanne A left a comment for Joe
"Hi Joe, I just left you a message in the chat room.  DO you know how to get in there?  Come join me! Jeanne A "
Oct 24
Jeanne A left a comment for Joe
"Hi Joe, Welcome!  I'm also a stage 4 survivor.  You can click on my name to see my profile.  I was diagnosed in Ocr 2005, 9 years ago. At first I had mets only in my omentum and a few in my abdomen and peritoneum. Since then…"
Oct 24
Jeanne A replied to Dale's discussion KRAS info-
"Ask your oncologist about this. He/she should know.  Some only run the KRAS test when you have to make the decision to use Erbitux (kras-wild) or not (kras mutation).  Some oncologists order the test right away.  The oncologist will…"
Oct 21
Jeanne A left a comment for Dale
"Thanks for the friend request - I can't believe we weren't already friends!"
Oct 20
Jeanne A replied to Jeannie Moore's discussion Our Conference is coming! "Fighting a smarter war on cancer" December 4-6th 2014.
"I Registered today.  What a great and perfect way to celebrate my 9 year diagnosis anniversary!  I would like to communicate with CCA management that I have a few concerns about the registration process: 1.  Giving my consent, with no…"
Oct 18
Jeanne A replied to James's discussion Stage 4, 10 months in and going well
"Hi James, I'm also a Stage 4 survivor, diagnosed at the get-go with Stage 4.I was diagnosed on Oct 17, 2005. Today is my 9th anniversary since diagnosis, and I was also told the 2-year statistic.  Back then, my mets were in my lymph nodes…"
Oct 18
Jeanne A replied to Alexandra Walker's discussion Wanting to know more about Colon Cancer
"Hello Alexandra, and thank you for looking into this, and being interested in raising awareness!  I would be happy to share my story with you.  Mine is a little different than most - this month I'm celebrating my 9-yr anniversary of…"
Oct 6
Jeanne A replied to sue kidera's discussion Septemebr 27 marks 9 years stage 4. Still kickin
"Sue, you are SO awesome, and I do believe you ARE thriving, even with chronic cancer!  We have our small group, you, me, mc, laura - all around 9 years.  I know there are others, we just know each other best, having met at the conference.…"
Sep 30
Jeanne A posted a status
"Hmmm, got my scan results, haven't talked to the onc yet. To me, it looks like things are stable. New free fluid in my pelvis area."
Sep 29
Jeanne A posted a status
"Not a day for good news for me: dropped the oxaliplatin because of neuropathy issues, and cea jumped from 16 - 35!! I have a scan tomorrow."
Sep 24
Jeanne A replied to Deb E's discussion Has my Dr. lost his mind?
"Deb, have you asked your doctor WHY he has chosen this direction for your treatment?"
Sep 19
Jeannie Moore replied to Jeanne A's discussion Debbie Samson passed away Sept 2, 2014
"Thank you jeanne for sharing.  Debbie was a wonderful supportive buddy to many newly diagnosed patients.  I loved when she'd be in our chats - always made me laugh.  My thoughts are with her family and friends as they face these…"
Sep 15
Jeanne A replied to Heidi :)'s discussion Restless Legs - Anyone Experiencing? Help
"Hi Heidi, I DO get something like that, and it might be due to a couple of things. Your best bet is to talk to a member of your medical team, either one of the nurses or the doctor.  Tell them the problem and they can better assess the…"
Sep 13

Profile Information

First Name
Last Name
SF Bay Area
US State or Territory
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin.


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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 5 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…


Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…


Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…


Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…


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At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3


At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

At 6:45pm on April 18, 2014, MikeC said…


At 11:17am on February 15, 2014, Paul said…
Hi Dear,

Just wanted to let ypu know our son Blake and and I are sitting here watching "how it's made" favorite for a ten year old.

But anyway we were chatting about how great you are and all the super support you give.

We are thinking about you and sending good thoughts. Please try to have a wonderful day and do something for you!


Paul and Blake your warriors
At 2:34pm on February 14, 2014, Crawford Clay said…

I understand be nervous and depressed. You've had quite a struggle.  Hoping and praying for good news.

At 11:01pm on December 28, 2013, iamhealed said…

Hi Jeanne, thanks for the warm welcome! I am excited about participating in the group chat and Stage IV survivor group next month. I am just so glad to find a group that will allow me to make friends and be supported all at the same time. I was diagnosed last year and I just want to find people who understand what I'm going through. I really think this group will be very helpful for me.


I look forward to chatting with you and getting to know you :)


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