Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Neuropathy Tips and Tricks

Started this discussion. Last reply by Jeannie Moore Nov 17. 2 Replies

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured…Continue

Tags: feet, hands, neuropathy

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains

 

Jeanne A's Page

Latest Activity

Dale replied to Jeanne A's discussion Stage 4? Let us know who you are!
"I'm Dale... I've  had a colon resection, 2 liver resections and chemo.  Have been NED for about a year.  I'm also a caregiver to my mom who has a recent re-staging to IV, when they found cancer in her adrenal gland.…"
Friday
Michael Carver left a comment for Jeanne A
"Happy fried Matzo to you Jeanne (smile). Praying 2015 will be the year that my cancer is controlable (sp). Y90 spheres in Jan. God Bless you for Chanuka and New Years. Love Michael"
Thursday
Jeanne A commented on Michael Carver's status
"Happy Latkes and Merry Christmas Goose to you, Michael! I often think aout you and Colleen, and send golden healing light to both of you."
Wednesday
James liked Jeanne A's discussion Stage 4? Let us know who you are!
Wednesday
Jeanne A posted a status
"I love the responsiveness of my onc - I requested a PET scan, we discussed, he agreed. Scan set for early Jan."
Tuesday
ellen k replied to Jeanne A's discussion Stage 4? Let us know who you are!
"I was upgraded to stage 4 October 2014 with mets to plevis wall. Just home from hospital following bowel obstruct and colostomy. To restart chemo after the first of the year. Hoping for good results! Also needed uthrea stents ."
Tuesday
Jeanne A's discussion was featured

Stage 4? Let us know who you are!

Hello everyone, we have had a few new members join this community who are Stage 4.  I know we all like finding those who have cases as similar to our own as possible, to share experiences, etc.  If you'd like to connect with the other Stage 4s in the community, please comment and let us know who you are!Thanks,Jeanne AStage 4Dx 10/17/05See More
Dec 22
Sandra replied to Jeanne A's discussion Stage 4? Let us know who you are!
"My weird story: went to gastro thinking gallbladder problem, had ultrasound which found numerous liver lesions, blood cea 1485. Clean endoscopy and clean colonoscopy. Liver biopsy said met cancer from colon. Gastro shocked and referred to…"
Dec 21
Jeanne A posted a status
Dec 10
Jeanne A posted a status
"Interesting CT results today - one liver lesion larger, all else stable. Hmmm.....see onc on Thursday."
Dec 9
Jeanne A replied to sue kidera's discussion acupuncture and white blood cell counts
"And to think my son and his gf think that I can balance my budget if I just drop acupuncture.  I don't think so....... Thanks Sue, my cea has been jumping up, not trending up, JUMPING up!  I had been slacking off on my…"
Nov 25
Jeannie Moore replied to Jeanne A's discussion Neuropathy Tips and Tricks
"Jeanne - you also have been doing acupuncture to help too! Thanks for posting this! jeannie"
Nov 17
Cheryl M. Daniele liked Jeanne A's discussion Neuropathy Tips and Tricks
Nov 13
Really replied to Jeanne A's discussion Neuropathy Tips and Tricks
"There is a button gadget that is helpful for people with neuropathy. Here is a link with the button hook and also other adaptive dressing gadgets:https://www.southwestmedical.com/category/Dressing-Aids/334Also, Mike has had success for his…"
Nov 13
Diamond left a comment for Jeanne A
"Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not…"
Nov 13
Jeanne A left a comment for Diamond
"Hi Diamond, welcome to our community!  I'm really sorry you got the entry ticket, but you're here now. I've found that just keeping a sense of humor has helped me a lot through this 'adventure'. I'm a nine-yr…"
Nov 13

Profile Information

First Name
Jeanne
Last Name
Angalet
City
SF Bay Area
US State or Territory
California
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
No
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin.

MY BLOG: http://www.caringbridge.org/visit/JeanneA

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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 5 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…

Continue

Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…

Continue

Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…

Continue

Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…

Continue

Comment Wall (506 comments)

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At 9:40pm on December 24, 2014, Michael Carver said…

Happy fried Matzo to you Jeanne (smile). Praying 2015 will be the year that my cancer is controlable (sp). Y90 spheres in Jan. God Bless you for Chanuka and New Years. Love Michael

At 11:37am on November 13, 2014, Diamond said…
Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not alone I'm filling a lot better about myself and my cancer y'all help me a lot and I want to thank everyone for there support diamond
At 3:02pm on November 3, 2014, Diamond said…
How does the one on one buddy works I'm new to this all need a lot of help with this site
At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3

 

At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

Xia
At 6:45pm on April 18, 2014, MikeC said…

Pain.

 
 
 

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