"Hi Anne, welcome to this community! I'm a stage 4 survivor, diagnosed in Oct 2005. You can click on my name to see my profile. I"m so sorry your sister is diagnosed with crc. I"m sure you are both overwhelmed…"
An online community for those affected by colorectal cancer.
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Jeanne A
- Female
- Martinez, CA
- United States
- Blog Posts (46)
- Discussions (376)
- Groups
- Photos (31)
- Photo Albums (1)
- Videos (1)
Jeanne A's Discussions
Stage 4? Chronic Cancer? A special chat time for us!
Started this discussion. Last reply by Karen D Black Aug 1, 2012. 17 Replies 0 Likes
Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC. We had over 50 replies to that post, and MyCRC/CCA has created something just for us! We are going…Continue
Ever had drains from your liver, or other drains?
Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies 0 Likes
Hi - I'm asking this question for a CRC survivor friend. Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC. Anyway, she just had a liver resection about a month ago.…Continue
Stage 4? Let us know who you are!
Started this discussion. Last reply by Tammy E. Oct 20, 2012. 131 Replies 0 Likes
Hello everyone, we have had a few new members join this community who are Stage 4. I know we all like finding those who have cases as similar to our own as possible, to share experiences, etc. If…Continue
Having problems with Chat Room, or website?
Started this discussion. Last reply by Katie Matusik Feb 2, 2012. 2 Replies 3 Likes
We have a new Chat Room module installed on our website. Some people have been having problems with being bumped out of the room, or having the computer freeze while trying to chat. Some of these…Continue
Jeanne A's Page
Latest Activity
Jeanne A left a comment for DotV"Hi DotV, welcome to our community! This is a great place to be with the questions you have. I'm a stage 4 survivor, diagnosed in Oct 2005. Things have changed when it comes to crc treatment, even since I've been…"
Jeanne A left a comment for Mark Arsenault"Hi Mark and Joy, I"m not far from either of you, in Pacheco! Not far from the 680/4 junction. I"m also a Kaiser member, Joy, going mostly to KP WC.
Jeanne A"
Jeanne A commented on Jeanne A's status"Don, my rash isn't so bad - mostly I have really dry scaly skin on my face, with a few 'pimples' on my face, a couple on my arms, legs, scalp, and in my mouth. I've been really tired, but so far this 3rd cycle with the Erb…"
Jeanne A replied to stkitt's discussion It's not right, but it's OK !"Hi Kitt, I'm so sorry about your recurrence. My first one was 8 months after ending chemo. I'm a chemo-for-life person, I believe. I just had my 92nd treatment yesterday. There are times I get really tired of living…"
Jeanne A left a comment for Bo Morris"Hello Bo, welcome to this great community! I"m also a Stage 4 survivor, diagnosed in Oct 2005. I'm still in treatment, and hanging in as best I can. You can click on my name to see my profile.
One of the features…"
Jeanne A left a comment for jlacquement"Hi Jim, welcome to our community! I'm also a Stage 4 survivor, diagnosed in Oct 2005. This community became a lifeline for me when I discovered it a almost three years ago. It helps when you have questions about treatment or…"
Jeanne A posted a status"I'm excited, CEA dropped one point after 2 tx with erbitux. This indicates its working, and I'll look for more indicators ahead. YAY!!"
Jeanne A left a comment for larry1665"Hi Larry, welcome to this community. We have a lot of Stage 4 patients and caregivers here, myself included. I was diagnosed with stage 4 crc in Oct 2005. You can click on my name to see my profile.
We have a special chat…"
Jeanne A posted a blog postWhy I Cry
Why I Cry I cry because I feel so badI miss the life I used to haveAfter being strong and healthy all my lifeI cry because health is my biggest gripe.Loneliness is another reasonOr when we find a growing lesionSupport and love are all aroundI need it in order to hold my ground.This new drug better do its jobAny energy I had it really did robMy eyes itch, my skin screamsI've never bought so many lotions and creams!Pretty soon, with all the face gooI'll look like I should be living at the zoo.Is…See More
Profile Information
- First Name
- Jeanne
- Last Name
- Angalet
- City
- SF Bay Area
- US State or Territory
- California
- How did you hear about My CRC Connections [select all that apply]
- Healthcare Provider, Other
- Race and Ethnicity [select only one]
- White (non-Hispanic)
- What is your connection to colorectal cancer [select only one]
- Patient/Survivor
- Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
- No
- Type of Cancer [select only one]
- Colon Cancer
- What stage at diagnosed [select only one]
- Stage 4
- Chemotherapy Received
- Fluoroucil (5-FU), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
- If you have metastases, please note where
- Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
- About Me
- Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13
MY BLOG: http://www.caringbridge.org/visit/JeanneA
- Have you read the Community Guidelines under the Community Tab? (required for membership)
- Yes
Jeanne A's Photos
Jeanne A's Blog
Why I Cry
Posted on May 12, 2013 at 8:00pm 2 Comments 2 Likes
Why I Cry
I cry because I feel so bad
I miss the life I used to have
After being strong and healthy all my life
I cry because health is my biggest gripe.
Loneliness is another reason
Or when we find a growing lesion
Support and love are all around
I need it…
CT Scan Results, 3/3/13
Posted on April 3, 2013 at 7:12pm 4 Comments 0 Likes
Ok, so I cheated a little...had my CT scan yesterday (routine, every 3 months, to see how chemo is working). My appt with the onc is next Monday, and he often calls me earlier than the appt to give me results. Today I was there for chemo, and the wonderful nurse printed the scan results for me. There are a couple of phrases in there that are new for me. Has anyone heard of:
Fistulous Medication?
pelvicaliectasis or ureterectasis?
I think I've figured out via…
Continue Broke my new toy already!
Posted on December 1, 2012 at 1:29am 5 Comments 0 Likes
So, the new toy, the nephrostomy bag, Penelopee, was only 2 days old and I broke her. :-( I came home earlier, and had to pee like crazy (the RIGHT kidney, lol), and I was rushing in the bathroom to clear the path to the toilet without wetting my pants. In the process of peeing in my pants, my pinky caught the tube coming out of my LEFT kidney, and I heard a snap....I was afraid I'd pulled it out! No, I only BROKE the tube at the connector valve...the whole darn thing had to be…
Continue My son, a guitarist who writes his own music, wrote a song for me!
Posted on October 15, 2012 at 9:53pm 2 Comments 2 Likes
My son is 28, and just sent me via email a link to a video he made. In the video he's singing a song he wrote for ME!! Here are the lyrics:
Oh yeah I've come from a place called love to deliver some good news
And yeah I've brung this old guitar but it'll never strum the blues for you
I swear that I'll never hum
I'll sing out louder than I've ever sung
Oh yeah I've come from a place called love to…
Comment Wall (477 comments)
- At 2:45pm on May 9, 2013,
mattix2003 said… My mom had stage 4 colon cancer and she had that for 3 1/2 years, she was such a fighter she would always say " I am going to fight this" and she did til the very end. Your children are close to my age (I am 30) just spend as much time with as possible. Even just a phone call that is what we did, I am lucky I only live 5 minutes away from my parents house. I am looking for groups that could help us , she was enrolled in hospice at the end, they were great to her and have been to us after still they call and check on us. They are truely a blessing.
- At 3:14pm on May 8, 2013,
missmel45 said… Thank you for the welcome. It is nice to hear something positive. My Husband is having a really hard time right now and it is killing me. I feel lost, he is my world and I can't really help him. I hope we can chat sometime and keep in touch. Thanks again.
- At 12:45pm on May 6, 2013, Erica said…
- Thank you for welcoming me. This is very new to me so bare with me as I learn how this all works.
- At 2:27pm on April 13, 2013,
Darlene Taylor said… Hi Jeanne...I had to take Tylinol PM,which is tylinol and benadryl together about a half hour before my infusions. I use Aveeno soap that came with the kit I got in the mail from Lilly on my face plus use the shampoo on my face also. I did this 2xs a day. Do what you feel is comfortable for you and keep these in mind as options. Some people did not get the rash as bad as i did and I hope you do not either. I think the sun did most of my facial damage. God bless.
- At 4:20pm on April 11, 2013, Jade Vira said…
So do they consider the 5 year mark from diagnosis? i thought it was from when last cancer free? Great if it is the first!!
- At 4:20pm on April 11, 2013, Jade Vira said…
Thank you for the welcome Jeanne! I am new to this whole chat thing, trying to figure it all out! :) I am doing well! Its actually been 4 years since my diagnosis. Diagnosed Mar 09 at 38, with mets to liver. Did xledoa, 5fu infusion & radiation to shrink tumor. Had liver/colon resection July 09 followed by folfox chemo. Cancer reoccurred liver may 2010. Had liver resection again followed by folfiri chemo. During chemo had bowel obstruction as well, surgery and 20 days in hospital. Finished chemo March 2011. Have been cancer free since. Glad to be part of the community and learn more, and continue to raise awareness in my community! Hope to figure out this chat thing soon lol :) Blessings to you my fellow survivor!!
- At 1:17pm on April 10, 2013, Darlene Taylor said…
Hi Jeanne...there are two things you need to be taking if you get the rash...minocycline 100mg 2xs a day...and a gel call clindamycin to spread on the rash 2xs a day. This is if you get the rash bad. The pill will work on its own. I also used Caladryl on my back and chest. Use sun screen always if you go out in the sun...Always, this I had to learn the hard way, now I wont even go outside without it. In the shower I use Head and Shoulders or Selsun Blue only on my back, chest and head...both worked for me. I hope this helps.
- At 8:22am on April 3, 2013,
Lee Silverstein said… - Hi Jeanne! Sorry I didn't get back to you sooner. I just overlooked your comment. I'm sitting in the waiting room waiting for round 3. So far, so good. Other than some neuropathy in my fingers, I've had practically no side effects. I've been in the gym most mornings and feel really good. After today I'll be 25% done. Thanks for checking on me. - Best regards, Lee
- At 8:47pm on March 13, 2013,
stkitt said… Dang I missed that but will try tomorrow. I had my first company today in 14 days and she brought a cherry pie..............
Hugs,
Kitt
- At 6:53pm on March 11, 2013,
Michael Carver said…
Hi Jeanne, I think the reason some folks pass so quickly is the placement of the cancer. I was told by my surgeon if it gets somewhere in the stomach there is about 2 years of life left. How sad is that. My cancer I was told is well behaved. Thats nice right. Looking forward to seeing how I could be NED with rising CEA ----- = no sense just false hopes that I was NED. Cant trick me lol.
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