Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Neuropathy Tips and Tricks

Started this discussion. Last reply by Jeannie Moore Nov 17, 2014. 2 Replies

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured…Continue

Tags: feet, hands, neuropathy

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15, 2014. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains


Jeanne A's Page

Latest Activity

Lucretia replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Went to Abramson Cancer Center - University of Penn in Philadelphia to learn whether surgery was a possibility. They didn't comment on that question. It seems that I have maxed out on radiation. We're looking at cryoablation and are…"
jennipepp replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Thanks, Dede. I grew up in Buffalo, NY (Hamburg) and tend to blame my cancer on the pollution in Lake Erie in the 1970s. ;-) "
DedeBonner replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Jennipepp!  Wow---your story is similar to mine.  I was actually scheduled to have a hysterectomy to get rid of the cyst but three days before my surgery, the horrible pain happened. Good luck with your treatments! Dede"
DedeBonner replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Thanks, Karen!!!  :)"
DedeBonner replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Thanks for your response, Jeannie!  I do live in Buffalo, NY and we have Roswell Cancer Institute---which is fantastic.  I don't go there, though, because I initially thought "If I go to Roswell, then I have…"
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Avastin's job is to cut the blood supply off to tumors so they can't grow.  Again, we have to remember to weigh the risks of chemo (and there is always risks) vs. the benefit......hence where some of the controversy comes from.…"
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Jeanne, why would one be on Avastin for life? I thought it was a biological agent to direct the chemo to work in certain areas?????  Boy, there sure is alot to learn!!!  Best wishes Dede!!!!!"
jennipepp replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Dede. I'm sorry to hear about your recurrence. My recurrence was also in my ovary and I also had painful tumor twisting that required surgery asap. Two PET/CT scans did not detect the tumor, but a pelvic sonogram revealed a baseball-sized…"
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"I'm sorry Dede.  You are not the first one who had ovary involvement and docs didn't know it because either the pet didn't light up or they just assume it was innocent only to find out later it was not.   For others who…"
DedeBonner replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Not sure if I've ever connected with this discussion..... I was dx with Stage 3 in October 2013.  Colon resection and 11 cycles of Folfox and then a CT scan showing NED.  However, I had a cyst on my ovary at the time of the original…"
KarenB replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Please post an update. Hoping you have sought a second opinion? I have been reading about TACE on JAMA. Transarterial Chemoembolization. Journal Of the American medical association. Sometimes the TACE is combined with RFA radio frequency ablation."
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"It's very rare as I"m sure you know Lucretia.  I see you are in PA.  Have you gone to one of the NCI centers i.e. Fox Chase, Thomas Jefferson for another opinion?  Have you had your life-time max of radiation or are you…"
Lucretia replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hello everyone! 2008 - at least Stage IIIa, hemicolectomy and interrupted/failed FOLFOX and XELODA2012 - mCRC 2012 - lung, thoracotormy and lobectomy2013 - 2014 - mCRC present to pleura - treated by radiations2015 - same 3 mets in pleura still…"
Mar 23
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Did his gums bleed?  Being on avastin, we worry about any bleeding.  It may just be normal soreness due to chemo and pain meds will take care of it.  I would surely talk to his nurse/doctor to be on the safe side.  It does say…"
Mar 16
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"There are options Denise including portal vein chemotherapy.  Not funny, but this is more common in pancreatic patients than crc patients and your grandmother is being treated for that.  Those docs may know more about this and be able to…"
Mar 16
Jenifer replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi, my husband is stage IV with mets to liver. he is going in for his 4th round of folfox/avastin next week. Question is...has anyone ever had a problem flossing their teeth??? sounds silly, but he did a little more aggressively than usual and his…"
Mar 14

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First Name
Last Name
SF Bay Area
US State or Territory
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, peritoneum, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin. Based on advice from Dr. Lenz at USC, added Avastin to the mix July 2014. After 8 treatments, dropped the oxali and just on Avastin/Xeloda.
1/2015 PE/CT scan - results tbd...


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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 6 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…


Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…


Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…


Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…


Comment Wall (486 comments)

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At 11:37am on November 13, 2014, Diamond said…
Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not alone I'm filling a lot better about myself and my cancer y'all help me a lot and I want to thank everyone for there support diamond
At 3:02pm on November 3, 2014, Diamond said…
How does the one on one buddy works I'm new to this all need a lot of help with this site
At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3


At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

At 6:45pm on April 18, 2014, MikeC said…


At 11:17am on February 15, 2014, Paul said…
Hi Dear,

Just wanted to let ypu know our son Blake and and I are sitting here watching "how it's made" favorite for a ten year old.

But anyway we were chatting about how great you are and all the super support you give.

We are thinking about you and sending good thoughts. Please try to have a wonderful day and do something for you!


Paul and Blake your warriors

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