Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Neuropathy Tips and Tricks

Started this discussion. Last reply by Jeannie Moore Nov 17, 2014. 2 Replies

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured…Continue

Tags: feet, hands, neuropathy

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15, 2014. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains


Jeanne A's Page

Latest Activity

Jeanne A left a comment for Fetsching
"Hi Nikki, you sent me a friend request, and said you have some questions for me. I'll do my best to answer....keep in mind I am NOT a doctor, and I have colon cancer, not rectal. I can speak to living long term with active cancer, and getting…"
Apr 20
James replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hello Karen. Surgery is set for the first week of May. I'm taking 1500 mg/day - so not that much but I'm heavily pre-treated which is part of why the fatigue is an issue. I'd like to take more. I started at 4000 mg/day and slowly had…"
Apr 16
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"NED - no evidence of disease "
Apr 16
htkatz replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Just curious- what is NED (I am unfamiliar with that one). When I had surgery they removed 30 lymph nodes and found cancer cells (but no tumors) in 9 of them..."
Apr 16
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Good Morning James,   When is your surgery?  How much Xeloda/Avastin are you taking?  I haven't had too much fatigue yet......but I guess it is cumulative.  How do they measure the lymph node involvement?  When I had…"
Apr 16
James replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Karen, I'm also on Xeloda and Avastin. I was able to go on this "maintenance" thing in October 2014. I had to reduce the dose due to bad fatigue but we mostly have really good control of the mets to lymph nodes. The last scan…"
Apr 16
Sandra replied to Jeanne A's discussion Stage 4? Let us know who you are!
"My mets are just liver. At diagnosis cea was 2100. Before 5th round it was 39 and after 6th round it was 13.9. Have first rescan Friday.  Fingers crossed for some good news."
Apr 15
Matt replied to Jeanne A's discussion Stage 4? Let us know who you are!
"that's awesome! Im mets in kidney and lung "
Apr 15
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Yes, Matt. I am stage IV and I know that I am not cured!!! but for now there is no sign of disease. My mets are peritoneal and they did not show up on the CT scan in March (there were 5 measurable ones in the Dec scan). I continue xeloda/avastin 3…"
Apr 15
Lucretia replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Yes, go ahead and have him post. I'm looking for anyone else with mCRC to the pleura. I've had 3 radiations, the first of which was SBRT. We're now looking at cryo-ablation. Have had one second opinion appointment to see if…"
Apr 15
Matt replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Karen, So you were stage 4 and now NED? As I understand it colon cancer is chronic so that is  awesome for you that its gone? Or I'm I missing something..."
Apr 15
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi!  I am on xeloda and avastin too.......and so far so good!!!  feeling pretty good and last scan was NED  (dx Oct 2014)  If you every want to compare notes, please let me know.......Karen "
Apr 15
htkatz replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi. I am Stage IV as well. I was diagnosed April of 2014. I had a colon resection this past January, and I just started taking Xeloda last week, and will continue Avastin every 3 weeks."
Apr 15
ellen k left a comment for Jeanne A
"I hope that you find a new clinical trial which will fit your needs. You are an inspiration to all of us in the stage 4 group! Ellen K"
Apr 9
Karen commented on Jeanne A's status
"How are you feeling?"
Apr 4
Karen liked Jeanne A's discussion Stage 4? Let us know who you are!
Apr 4

Profile Information

First Name
Last Name
SF Bay Area
US State or Territory
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, peritoneum, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin. Based on advice from Dr. Lenz at USC, added Avastin to the mix July 2014. After 8 treatments, dropped the oxali and just on Avastin/Xeloda.
1/2015 PE/CT scan - results tbd...


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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 6 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…


Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…


Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…


Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…


Comment Wall (487 comments)

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At 8:52pm on April 9, 2015, ellen k said…

I hope that you find a new clinical trial which will fit your needs. You are an inspiration to all of us in the stage 4 group! Ellen K

At 11:37am on November 13, 2014, Diamond said…
Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not alone I'm filling a lot better about myself and my cancer y'all help me a lot and I want to thank everyone for there support diamond
At 3:02pm on November 3, 2014, Diamond said…
How does the one on one buddy works I'm new to this all need a lot of help with this site
At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3


At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

At 6:45pm on April 18, 2014, MikeC said…



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