Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

For stage 4's has your treatment gone on and on and on? How do you keep yourself motivated?

Started this discussion. Last reply by Danny May 9. 6 Replies

Hi Everyone, some of you know me - I'm a stage 4 crc survivor diagnosed in Oct 2005. Yes, my "Cancer Adventure" has been going on for a while. It'll be 10 years this October. I live alone, my son…Continue

Tags: treatment, 4, stage

Neuropathy Tips and Tricks

Started this discussion. Last reply by Jeannie Moore Nov 17, 2014. 2 Replies

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured…Continue

Tags: feet, hands, neuropathy

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15, 2014. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

 

Jeanne A's Page

Latest Activity

Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"We help each other not go crazy!  Living with stage disease is tough regardless if you are in treatment or NED (no evidence of disease).  You are not being negative nelly either.  You are trying to absorb some difficult news.…"
May 13
DedeBonner replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Jeannie, Just following up after my PET scan a couple of weeks ago.  I had two spots light up.  One "along the anterior margin of the anastomotic site" and another "more distally, adjacent to the sigmoid…"
May 13
Jeanne A replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hello Prenault, welcome to this community. I'm glad you're here, even though I'm NOT glad you have the 'entry ticket'. I am also stage 4, diagnosed in Oct 2005. This October 17 will be my 10-yr party - 10 yrs since…"
May 13
Sunny replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Thank you Sandra! He did send my pathology to see if erbitux would work for me, but it did not come back saying it would be and thus he put me on Avastin. I am happy to hear you are having positive results with your chemo! Unfortunately, my surgeon…"
May 12
Sandra replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Did you get tested to ser if Erbitux will work for you? It appears to be really helping me. Doc kind of indicated Erbitux for life (until it stops working) but I'm going to get a surgeons opinion. Just finished my 7th round. Never hurts to get…"
May 12
Sunny replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hello, I am now stage 4; originally diagnosed as stage 2a March 28 2014"
May 12
Gary Peeler liked Jeanne A's discussion Stage 4? Let us know who you are!
May 12
Danny replied to Jeanne A's discussion For stage 4's has your treatment gone on and on and on? How do you keep yourself motivated?
"where am I needed?  Why am I here? To help rest of us keep fighting!"
May 9
Jeannie Moore replied to Jeanne A's discussion For stage 4's has your treatment gone on and on and on? How do you keep yourself motivated?
"Amazing Sue - well said.  It's hard to find words when you are not in the same boat.  Thank you for offering this lifeline to Jeanne.  You articulate so well what it means to be living with this disease and what you can and…"
May 7
Lisa replied to Jeanne A's discussion For stage 4's has your treatment gone on and on and on? How do you keep yourself motivated?
"I was diagnosed January 16th, 2013. I had colon surgery and then began Folfox4. By the time I finished Folfox4, I had numb hands and feet (from the oxaliplatin), awful rectal bleeding (Avastin was not my friend), and general fatigue. I took a break…"
May 6
James replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Karen, I was able to come home today, just the day after surgery. I'm doing quite well - minimal pain/discomfort, and no nausea. The surgery went well and was laproscopic. Now to ask the med-onc how soon I should go back on Xeloda. It sure…"
May 6
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"I am so sorry......but you are in the right place for information, answers, and support!!!!"
May 6
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"That's great!!!!!  Happy for you both!  "
May 6
Karen replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi James, Have you had surgery?  How are you? K "
May 6
Chris replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Husband recently diagnosed stage IV signet cell adenocarcinoma colon"
May 6
redpixie replied to Jeanne A's discussion Stage 4? Let us know who you are!
"I'm the fiance of htkatz. I'm grateful he's NED for now, and I'm optimistic. I know we've been lucky, he's responded really well to all the chemo (except Xeloda, the side effects were too severe to bear)."
May 4

Profile Information

First Name
Jeanne
Last Name
Angalet
City
SF Bay Area
US State or Territory
California
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
No
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, peritoneum, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin. Based on advice from Dr. Lenz at USC, added Avastin to the mix July 2014. After 8 treatments, dropped the oxali and just on Avastin/Xeloda.
1/2015 PE/CT scan - results show stability, so we'll stay the course.
4/2015 - Chemo stops working, time for a 2 - 3 month break, then finding clinical trials.

MY BLOG: http://www.caringbridge.org/visit/JeanneA

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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 6 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…

Continue

Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…

Continue

Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…

Continue

Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…

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Comment Wall (487 comments)

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At 8:52pm on April 9, 2015, ellen k said…

I hope that you find a new clinical trial which will fit your needs. You are an inspiration to all of us in the stage 4 group! Ellen K

At 11:37am on November 13, 2014, Diamond said…
Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not alone I'm filling a lot better about myself and my cancer y'all help me a lot and I want to thank everyone for there support diamond
At 3:02pm on November 3, 2014, Diamond said…
How does the one on one buddy works I'm new to this all need a lot of help with this site
At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3

 

At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

Xia
At 6:45pm on April 18, 2014, MikeC said…

Pain.

 
 
 

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