Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore on Monday. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains

Stage 4? Let us know who you are!

Started this discussion. Last reply by Sheridan Folger May 20. 194 Replies

Hello everyone, we have had a few new members join this community who are Stage 4.  I know we all like finding those who have cases as similar to our own as possible, to share experiences, etc.  If…Continue

Tags: stage, connect, 4, support

 

Jeanne A's Page

Latest Activity

Jeannie Moore replied to Jeanne A's discussion Debbie Samson passed away Sept 2, 2014
"Thank you jeanne for sharing.  Debbie was a wonderful supportive buddy to many newly diagnosed patients.  I loved when she'd be in our chats - always made me laugh.  My thoughts are with her family and friends as they face these…"
Monday
Jeanne A replied to Heidi :)'s discussion Restless Legs - Anyone Experiencing? Help
"Hi Heidi, I DO get something like that, and it might be due to a couple of things. Your best bet is to talk to a member of your medical team, either one of the nurses or the doctor.  Tell them the problem and they can better assess the…"
Sep 13
sue kidera replied to Jeanne A's discussion Debbie Samson passed away Sept 2, 2014
"Debbie had the best sense of humor. She was a tough lady. I will always cherish the time we all spent together in Baltimore eating her brownies!!! Then needing to eat more brownies, because we ate her brownies. You had to be there. RIP to Deb "
Sep 12
Jeanne A posted photos
Sep 10
MikeC replied to Jeanne A's discussion Debbie Samson passed away Sept 2, 2014
"My heart breaks for your passing Debbie. You did live life to its fullest. I love you my friend."
Sep 5
Jeanne A posted a discussion

Debbie Samson passed away Sept 2, 2014

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: https://www.facebook.com/debbiecashsamson?fref=ts. The posting of her passing is near the bottom, dated Sept 2.Debbie, I love you, rest with the angels.See More
Sep 5
Steve Bryant left a comment for Jeanne A
"I was diagnosed dec 2013 stage 3  "
Sep 4
Steve Bryant left a comment for Jeanne A
"hi Jeanne thanks for the warm welcome"
Sep 4
Jeanne A left a comment for Steve Bryant
"Steve, welcome, you've joined a great community. How long ago were you diagnosed?   I'm a stage 4 survivor, diagnosed in Oct 2005, coming up on 9 years!  I still have active disease and I'm on chemo.  You can click on…"
Sep 4
Jeanne A left a comment for Gerry
"Yay, my friend Gerry joined us! Gerry, I"m so glad you're here.  You have a lot to offer others, and we ALL learn from each other. Tues evenings, 4 - 5 PST, we have a group mainly for Stage 4s. I like that one too. Gerry is a friend…"
Sep 4
Jeanne A posted a status
"I've been so absent! I'm ok, Tu night ER for possible PE, but all clear. Yesterday at 4, running around picking up mom, etc. Today chemo."
Sep 3
Cruiser liked Jeanne A's blog post Saying Goodbye
Aug 26
Jeanne A left a comment for Really
"Really, I'm sorry you are having computer issues.  We love when you're in the chat room...xoxoxo"
Aug 26
Jeanne A replied to Crawford Clay's discussion Still Rectum Free
"Congratulations, Crawford!  We're so lucky/blessed to have you still around!"
Aug 20
Jeanne A replied to Karen's discussion Would love to hear from Stage 4 Survivors
"Hi Karen, and welcome to one of the most welcoming communities I know!  Hear ye Hear ye, I'm also a stage 4 survivor. I was diagnosed in October 2005, still have active disease, and still in treatment. You can take a look at my profile if…"
Aug 19
Jeanne A replied to akenney's discussion Low platelets, no treatment - anyone else have this experience
"Hi Alan, I have not had treatment held due to low platelets.  I have friends who have had that happen. I've had treatment held due to low white count.  It IS frustrating when you just want to get through your cycles of chemo, and…"
Aug 12

Profile Information

First Name
Jeanne
Last Name
Angalet
City
SF Bay Area
US State or Territory
California
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
No
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin.

MY BLOG: http://www.caringbridge.org/visit/JeanneA

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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 5 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…

Continue

Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…

Continue

Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…

Continue

Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…

Continue

Comment Wall (502 comments)

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At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3

 

At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

Xia
At 6:45pm on April 18, 2014, MikeC said…

Pain.

At 11:17am on February 15, 2014, Paul said…
Hi Dear,

Just wanted to let ypu know our son Blake and and I are sitting here watching "how it's made" favorite for a ten year old.

But anyway we were chatting about how great you are and all the super support you give.

We are thinking about you and sending good thoughts. Please try to have a wonderful day and do something for you!

Best

Paul and Blake your warriors
At 2:34pm on February 14, 2014, Crawford Clay said…

I understand be nervous and depressed. You've had quite a struggle.  Hoping and praying for good news.

At 11:01pm on December 28, 2013, iamhealed said…

Hi Jeanne, thanks for the warm welcome! I am excited about participating in the group chat and Stage IV survivor group next month. I am just so glad to find a group that will allow me to make friends and be supported all at the same time. I was diagnosed last year and I just want to find people who understand what I'm going through. I really think this group will be very helpful for me.

 

I look forward to chatting with you and getting to know you :)

At 5:03pm on December 23, 2013, Jamie said…

Doing well had my chemo wa  today so I'm a little tired. My main side effects have been neuropathy and sensitivity to cold. My hair has thinned a  little used to be really thick. Past chemo drugs I been on the Oxiplatin,  Avasitin, Folfox, Folfiri.

 Down to  one chemo drug now Verbirtix.  Merry Christmas to all.

 
 
 

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