Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Neuropathy Tips and Tricks

Started this discussion. Last reply by Jeannie Moore on Monday. 2 Replies

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured…Continue

Tags: feet, hands, neuropathy

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains

 

Jeanne A's Page

Latest Activity

Jeannie Moore replied to Jeanne A's discussion Neuropathy Tips and Tricks
"Jeanne - you also have been doing acupuncture to help too! Thanks for posting this! jeannie"
Monday
Cheryl M. Daniele liked Jeanne A's discussion Neuropathy Tips and Tricks
Nov 13
Really replied to Jeanne A's discussion Neuropathy Tips and Tricks
"There is a button gadget that is helpful for people with neuropathy. Here is a link with the button hook and also other adaptive dressing gadgets:https://www.southwestmedical.com/category/Dressing-Aids/334Also, Mike has had success for his…"
Nov 13
Diamond left a comment for Jeanne A
"Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not…"
Nov 13
Jeanne A left a comment for Diamond
"Hi Diamond, welcome to our community!  I'm really sorry you got the entry ticket, but you're here now. I've found that just keeping a sense of humor has helped me a lot through this 'adventure'. I'm a nine-yr…"
Nov 13
Jeanne A left a comment for Markchmbrln
"Hi Mark, welcome to the CCA community! I'm also a stage 4 survivor, diagnosed in Oct 2005, I still have active disease, and still in treatment. Whew.  You can click on my name to see my profile. I like to connect with stage 4 survivors,…"
Nov 13
Jeanne A posted a discussion

Neuropathy Tips and Tricks

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured out that I don't have to undo all the buttons on the shirt - just a few, I pull it off/on over my head.2. Feet: When my feet get tired, I change my shoes. I rotate between 3 pairs that I wear regularly.3. Hand:  When I have problems picking up small things, like a coin off a table top, I work around…See More
Nov 13
Jeanne A posted a photo
Nov 13
Jeanne A left a comment for MikeC
"Hi Mikey, Ditto everything Sue said. Focus on scan results, not the cea. Come back up here into the light. It's a lot more fun than the dark place. Believe me, I understand there are so many factors that press you down into the dark. I really…"
Nov 7
Diamond left a comment for Jeanne A
"How does the one on one buddy works I'm new to this all need a lot of help with this site"
Nov 3
Jeanne A left a comment for Diamond
"Hello sparkly Diamond!  (Sandra is welcome too!)  Welcome to one of the best online communities for colon cancer survivors and caregivers.  I"m also a stage 4 survivor, you can click on my name to see my profile.  I was…"
Nov 3
Jeanne A left a comment for mitzi
"Mitzi, it's almost time for our 12 noon chat!  I hope you can figure out how to get into the chat room, and can join us.  I'll send you a note from the chat room, and see if you hear a 'ding' when the message comes…"
Oct 30
Jeanne A left a comment for mitzi
"Hi Mitzi, welcome to the cca community! You're right, it IS a positive place. When I found this site several years ago, I felt like I found a lifeline!   I'm also a stage 4 survivor.  I was diagnosed (dx) in Octrober 2005,…"
Oct 30
Joe left a comment for Jeanne A
"Hi Jeanne, Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life…"
Oct 25
Jeanne A left a comment for Joe
"Hi Joe, I just left you a message in the chat room.  DO you know how to get in there?  Come join me! Jeanne A "
Oct 24
Jeanne A left a comment for Joe
"Hi Joe, Welcome!  I'm also a stage 4 survivor.  You can click on my name to see my profile.  I was diagnosed in Ocr 2005, 9 years ago. At first I had mets only in my omentum and a few in my abdomen and peritoneum. Since then…"
Oct 24

Profile Information

First Name
Jeanne
Last Name
Angalet
City
SF Bay Area
US State or Territory
California
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
No
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin.

MY BLOG: http://www.caringbridge.org/visit/JeanneA

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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 5 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…

Continue

Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…

Continue

Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…

Continue

Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…

Continue

Comment Wall (505 comments)

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At 11:37am on November 13, 2014, Diamond said…
Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not alone I'm filling a lot better about myself and my cancer y'all help me a lot and I want to thank everyone for there support diamond
At 3:02pm on November 3, 2014, Diamond said…
How does the one on one buddy works I'm new to this all need a lot of help with this site
At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3

 

At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

Xia
At 6:45pm on April 18, 2014, MikeC said…

Pain.

At 11:17am on February 15, 2014, Paul said…
Hi Dear,

Just wanted to let ypu know our son Blake and and I are sitting here watching "how it's made" favorite for a ten year old.

But anyway we were chatting about how great you are and all the super support you give.

We are thinking about you and sending good thoughts. Please try to have a wonderful day and do something for you!

Best

Paul and Blake your warriors
 
 
 

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