Jeanne A
  • Female
  • Pleasant Hill, CA
  • United States
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Jeanne A's Discussions

Neuropathy Tips and Tricks

Started this discussion. Last reply by Jeannie Moore Nov 17, 2014. 2 Replies

This is a photo I drew of what my hands feel like with the neuropathy. Yours might feel a bit different. The three words at the top are Tingles, Pain and Numb.Tips and Tricks:1.Hands:  I've figured…Continue

Tags: feet, hands, neuropathy

Debbie Samson passed away Sept 2, 2014

Started this discussion. Last reply by Jeannie Moore Sep 15, 2014. 3 Replies

It is with a heavy heart for me to tell you another warrior has joined the angels. Debbie Samson passed away Sept 2, 2014.  This is posted on her facebook page: …Continue

Tags: away, passed

Stage 4? Chronic Cancer? A special chat time for us!

Started this discussion. Last reply by Lisa Aug 1, 2013. 18 Replies

Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC.  We had over 50 replies to that post, and MyCRC/CCA has created something just for us!  We are going…Continue

Tags: new, chat, IV, 4, Stage

Ever had drains from your liver, or other drains?

Started this discussion. Last reply by Vanessa Dec 17, 2012. 9 Replies

Hi - I'm asking this question for a CRC survivor friend.  Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC.  Anyway, she just had a liver resection about a month ago.…Continue

Tags: resection, liver, drains


Jeanne A's Page

Latest Activity

Jeanne A replied to Patsy's discussion Good news from my doctor
"Patsy, congratulations! I"m one of the ones Jeannie referred to as 'chronic'. I was diagnosed in Oct, 2005. year I'm coming up on my 10 yr anniversary since diagnosis. I've been having chemo more often than not during my…"
Jeanne A left a comment for Christine
"Hi Christine, you've found a great place to find people who understand your journey. I was diagnosed stage 4 in Oct 2005, and I'm still in treatment. I imagine especially going in with emergency surgery and waking up with a bag is…"
Denise replied to Jeanne A's discussion Stage 4? Let us know who you are!
"They are trying the same treatment since I only had 12 rounds, FolFox and Avastin.  We'll see how that works.  My onc was very hopeful.  She said I became eligible for surgery very quickly, so I've barely scratched the…"
Jeanne A replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Denise, I'm sorry to hear this news. At stage 4, we hope for the best outcome, and we have these roller coaster periods when things just feel topsy turvy, and disappointing. Are you on a different chemo combo this time? What are they giving…"
Jeanne A replied to DedeBonner's discussion Neck pain and headaches during Folfiri + Avastin???
"Hi Denise, you are NOT going crazy!  The side effects I"ve felt, of the ones you mention above, are that darn neck pain, and during my first course of chemo I'd have a headache every day.  As Jeannie said, I'd have the other…"
Patsy replied to Jeanne A's discussion Stage 4? Let us know who you are!
"I'm sorry you have the cancer in your liver again. You can beat this! Hang in there and fight, fight, fight!!!"
Denise replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Well - after being NED since July - I am back on chemo.  CEA 1.6, large tumor on liver, though nothing is showing in the primary sight.  My liver grew a lot after my resection, so I guess that's good.  We are planning a trip to…"
atran replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Jeannie: Thank you for the approval and letting me keep the thread. I had no idea about clearing my project with the CCA Team first, so I apologize. Amanda"
Jan 15
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Amanda, I see you have a started a thread on the discussion board.  I'm going to approve that.  Normally we want to talk with you first about your project but we didn't know. I am asking that you do not contact members…"
Jan 15
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Patsy - i'm going to allow Amanda's survey to remain on the discussion board but I am going to ask her to not post on other threads.  If you want to respond, you may do so on her thread.  We don't like when folks arrive…"
Jan 15
Patsy replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Amanda. I'd be happy to help you on this site. I'm curious, though, as to what made you choose me?"
Jan 15
atran replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi Patsy. My name is Amanda, and I'm currently a junior in high school conducting a science fair project on time patterns in cancer stages. I was wondering if you would be willing to answer a few quick questions for my research. Please get back…"
Jan 15
Patsy replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Hi everyone. My name is Patsy, and I was diagnosed with Stage III colon cancer in 2007. In 2009, it metastasized to the liver, so I now have Stage IV. I have been through 9 months, then one year of chemo. Most recently the cancer metastasized to…"
Jan 13
Greg replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Thanks for the insite! I will let you know how it goes!!!!"
Jan 12
dan brimeyer replied to Jeanne A's discussion Stage 4? Let us know who you are!
"When I first met Dr Grothey, I was meeting him for a second opinion after my first round of chemo/radiation was complete and to be sure that I was doing the right thing. I was doing all my procedures back in Iowa were I live.…"
Jan 12
Jeannie Moore replied to Jeanne A's discussion Stage 4? Let us know who you are!
"Xeloda is a prodrug of 5f - it converts to 5fu once in the body.  It is also a pill version of 5fu.   They may switch you over to the continuous infusion of 5f instead of xeloda to see if that helps.  Please keep me in the loop and…"
Jan 12

Profile Information

First Name
Last Name
SF Bay Area
US State or Territory
How did you hear about My CCA Support [select all that apply]
Healthcare Provider, Other
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
If you have metastases, please note where
Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
About Me
Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
Add a nephrostomy tube and bag to the list, 11/12
Add Erbitux to the FOLFIRI starting 4/17/13.
Erbitus/FOLFIRI not keeping cancer stable, switched to CAPOX, or Xeloda and Oxaliplatin.


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Jeanne A's Blog

Dr Lenz consult - summary

Posted on July 2, 2014 at 12:32pm 5 Comments

Summary of 6/30/14 visit with Dr. Heinz-Josef Lenz, Norris Cancer Center, USC

First I'll give you the facts, then I'll share with you my observations and interpretations.

The integrative part:

1. no red meat

2. no refined sugar

3. Vitamin D3 3000 IU/day

4. Vitamin B6, 300 mg/day

5. Probiotics 3x/day

6. Milk thistle 3 - 4 caps/day

The treatment plan going forward:

1. Right now, add Avastin to my chemo regimen.

     a. My onc…


Thoughts and Reflections - my EIGHT YEAR ANNIVERSARY!!

Posted on October 16, 2013 at 11:57pm 2 Comments

Amazing, really. EIGHT YEARS since my cancer diagnosis. The average is 2 yrs.  I'm still hanging in there.  I'm SO appreciative of the circumstances contributing to my longevity.  Call it being blessed, or fortunate, or lucky...regardless, I'm incredibly appreciative. 

I've been remembering some of the rough spots over the past 8 years, and there have been a few!  I've been remembering some of the 'jewels' I've discovered, even the more obscure ones.  Like the elderly woman I…


Saying Goodbye

Posted on August 6, 2013 at 12:56pm 3 Comments

In anticipation

Of the separation

We create frustration

and aggravation

and irritation.

We get caught in the emotions

Not realizing, we go through the motions

Somehow we create commotions

No fixing it, not even magic potions.

Maybe its easier to leave,

At least, so we believe,

With such skill we 'upheave',

And others want a reprieve

From the chaos we've achieved.

Yes I'll…


Taking a Chemo Break - YAY!

Posted on July 22, 2013 at 8:14pm 1 Comment

Based on CT scan results from last week, which showed stability and slight shrinkage, my onc and I have decided I'll take a chemo break for 2 - 3 months.  We discussed the advisability of this, considering I just started erbitux a few months ago.  I don't want to lose the ground we've gained from adding erbitux.  We talked about possibly dropping everything but the 5fu.  The onc's comment was that because I'm moving next month, let's give my body a chance to get some energy back, and let me…


Comment Wall (506 comments)

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At 9:40pm on December 24, 2014, Michael Carver said…

Happy fried Matzo to you Jeanne (smile). Praying 2015 will be the year that my cancer is controlable (sp). Y90 spheres in Jan. God Bless you for Chanuka and New Years. Love Michael

At 11:37am on November 13, 2014, Diamond said…
Thks for the info thts what I need also I also have numbness in my finger tips will be attending chat on tues before I was told about this web site I felt like I was the only one going thru this was always sad scared now that I now I'm not alone I'm filling a lot better about myself and my cancer y'all help me a lot and I want to thank everyone for there support diamond
At 3:02pm on November 3, 2014, Diamond said…
How does the one on one buddy works I'm new to this all need a lot of help with this site
At 9:26pm on October 25, 2014, Joe said…

Hi Jeanne,

Sorry I don't know how to get into chat room, have to get the kids to help. Nine years is great, it's encouraging to hear that. I hope your quality of life is good. Mine is great for now. In some ways cancer has enhanced my life experience. It has shown me the true value of things in my life. I have not suffered any pain or discomfort. I don't worry about what lies ahead, I just enjoy life. 

Love the pictures. Your dog looks cute. Had a greyhound myself but he died a few years ago. Didn't replace him. Too   much work.

Regards .....Joe

At 1:39pm on September 4, 2014, Steve Bryant said…

I was diagnosed dec 2013 stage 3


At 1:26pm on September 4, 2014, Steve Bryant said…

hi Jeanne thanks for the warm welcome

At 9:05pm on June 14, 2014, Albert said…
Glad to know you Jeannie! Okay we are the same condiition and i been trying to know people same as ours. Happy to know you are doing good. I hope and always pray we live a long life. Sometimes i am fantasizing if i can turn back the hands of time i would have known earlier and have it diagnose earlier then we would not be in this condition. I still hope to get well. With God nothing is impossible!
At 12:57am on June 14, 2014, Albert said…
Hi Jeanne! I was diagnosed 2012 stage 4. I am doing good right now. Thank God i am still on chemo. How about you? When were you diagnosed? I would really glad to meet other people with my condition. God Bless!
At 7:14pm on June 2, 2014, Stanfordmom said…
Hi Jeanne,
So great to have connected with you! yes, I am John's wife, and looking forward to talking to you!

At 6:45pm on April 18, 2014, MikeC said…



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