Thank you for attending the Colon Cancer Alliance webinar regarding hereditary colon cancer. I hope that you found it interesting and informative! I am responding to the question that you asked in…Continue
Acquiring and Managing your Medical Records It can be very helpful to maintain your own copy of importent health data and it is your right to have access to it though it may not seem like it the…Continue
Please join me in registering for the upcoming webinar that is being coordinated through the efforts of the major participants in Colorectal Cancer Advocacy: Chris4Life COLONTOWN (a community of…Continue
While this is not new information to many of us, it is still exciting when taken in perspectiveMedscape Medical News > Oncology Cancer Beats All Other Fields for New Drug Approvals in 2012Eleven…Continue
Drum Roll........ MRI results: Still "No Evidence of Disease" Still dancing with ned!
So I guess gall stones is a good thing when the alternative is metastatic disease and explains the pain.
He loaded me up with pain meds and scheduled a trip back in 6 more months. He explained we can quit checking MY CEA since in my case it is meaningless. His explanation is that since my tumor never raised my CEA it doesn't produce the substance that CEA tests for. For CEA to go up the…Continue
I'm off to Duke for an MRI in an hour. Who knows why Its scheduled for Saturday morning, I guess they are trying to milk all the money they can out of the machine. The test may clear up what has been causing my right side abdominal pain. At first I thought it was mets or adheasions, then I saw the last MRI found gall stones and that made sence. Maybe the mystery will be solved, the pain has been less severe and less frequent. I don't see the doctor for two weeks so I guess I will go…Continue
It's my wife's turn with the insurance card. She slipped and fell in the kitchen on Friday and broke both of her wrists. One of them had a plate and screws in it from 5 years ago. We both have Osteoprosis. This time she managed to bend the plate and strip out screws. The Ortho doctor was so impressed she showed me the x-rays. She said she had only seen one other case of bending a plate without breaking the bone at a location above or below the plate and that person was an…Continue
So, what is an expert patient?
- know the quality of their lives is primarily up to them
- believe they can exert significant control over their lives
- are determined to live a healthy life despite their chronic condition
- are realistic about the impact of their disease
- have worked out what services exist and utilize those services appropriately.
* Expert patients blogs:
- have a sense of audience that goes beyond family and…