John Lloyd
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  • Durham, NC
  • United States
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John Lloyd's Discussions

Acquiring and Managing your Medical Records

Started this discussion. Last reply by Carol O Jan 23, 2013. 1 Reply

Acquiring and Managing your Medical Records   It can be very helpful to maintain your own copy of importent health data and it is your right to have access to it though it may not seem like it the…Continue

Tags: Records, Medical

The Colon Cancer Community Unites ~ Webinar For Colon Cancer Patients

Started this discussion. Last reply by Jeannie Moore Jan 7, 2013. 2 Replies

Please join me in registering for the upcoming webinar that is being coordinated through the  efforts of the major participants in Colorectal Cancer Advocacy: Chris4Life COLONTOWN (a community of…Continue

Cancer Beats All Other Fields for New Drug Approvals in 2012

Started this discussion. Last reply by pothomas Dec 24, 2012. 3 Replies

While this is not new information to many of us, it is still exciting when taken in perspectiveMedscape Medical News > Oncology Cancer Beats All Other Fields for New Drug Approvals in 2012Eleven…Continue

Tags: approval, drug

A Poem

Started this discussion. Last reply by Dixie Dec 17, 2012. 3 Replies

I believe that imagination is stronger than knowledge. That myth is more potent than history. That dreams are more powerful than facts. That hope always triumphs over experience. That laughter is the…Continue

 

John Lloyd's Page

Latest Activity

Carol O replied to John Lloyd's discussion a place for you to add your humor. You might be a Cancer Survivor if:
"AWESOME, John!!  Thanks for posting and thanks to others for adding their chuckles!  Laughter is good medicine - in more ways than one! Hugs!"
Thursday
John Lloyd replied to John Lloyd's discussion a place for you to add your humor. You might be a Cancer Survivor if:
" "
Dec 15
John Lloyd liked Jeannie Moore's discussion What a wonderful Summit/Conference in DC last week! WEBINAR to recap in January 2015!!
Dec 9
Nancy Butterfield and John Lloyd are now friends
Nov 12
John Lloyd replied to Jeannie Moore's discussion Our friend, Gordon Cole........
"   I met Gordon about 5 years ago not long after I was diagnosed with CRC.  Our paths met at many places - as patients at Duke, as advocates for CCA and Fight CRC, Sitting together at conferences,  attending meetings of the North…"
Sep 29
John Lloyd posted a status
"I am happy to share - yesterday I passed from stage 3 rectal CA to the milestone of 5 years with no evidence of disease! Warm hugs to ALL"
Aug 21
fapsurvivor left a comment for John Lloyd
"Another computer guy!!!  AWESOME!!! I'm a UNIX/LINUX dude, what about you?"
Feb 27
Richard Mason replied to John Lloyd's discussion a place for you to add your humor. You might be a Cancer Survivor if:
"A buddy just posted this on Facebook, and based on our chats, I knew I had to brink it over here!! "
Feb 22
Richard Mason replied to John Lloyd's discussion a place for you to add your humor. You might be a Cancer Survivor if:
Feb 22
John Lloyd replied to John Lloyd's discussion a place for you to add your humor. You might be a Cancer Survivor if:
"You might be a Colorectal Cancer Survivor if:   your trash can looks like this... "
Feb 21
iamhealed liked John Lloyd's discussion Acquiring and Managing your Medical Records
Jan 8
John Lloyd and Roxine are now friends
Dec 18, 2013
John Lloyd replied to Randy Henniger's discussion Who is the KING/QUEEN of CHEMO???
"I'm posting 'cause I think the position of Court Jester is still open. 28 rounds of radiation with Xeloda chemo Lower anterior resection surgery. (remove rectum)   or as I put it "I lost my ass in New York City 9 rounds of…"
Nov 19, 2013
John Lloyd replied to Coach Shirley's discussion Introduction and asking for advice from Raleigh, NC
"hi Shirley,      I'm sorry to hear you are having to deal with this.   I know many patients who love Dr Morse,   He is well informed and is involved with or keeps up with most of the clinical trials available.  …"
Nov 8, 2013
Ileana arriola liked John Lloyd's discussion The Colon Cancer Community Unites ~ Webinar For Colon Cancer Patients
Oct 16, 2013
Darlene Wade replied to John Lloyd's discussion a place for you to add your humor. You might be a Cancer Survivor if:
"OMG. Love it."
Aug 22, 2013

Profile Information

City
Durham
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Type of Cancer [select only one]
Rectal Cancer
What stage at diagnosed [select only one]
Stage 3
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Eloxatin (Oxaliplatin)
If you have metastases, please note where
I was diagnosed as T3N1 for rectal cancer with local lymph node involvement. pre-surgical Radiation fried the nodes so well they could only identify 7 nodes in the surgical specimen
About Me
I do geeky things for a living like working with computers and network hardware along with business phone systems and the occasional security system.

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John Lloyd's Blog

6 month Oncologist folowup visit

Posted on April 26, 2011 at 7:58pm 3 Comments

Drum Roll........ MRI results: Still "No Evidence of Disease"   Still dancing with ned!

So I guess gall stones is a good thing when the alternative is metastatic disease and explains the pain.

He loaded me up with pain meds and scheduled a trip back in 6 more months.  He explained we can quit checking MY CEA since in my case it is meaningless.  His explanation is that since my tumor never raised my CEA it doesn't produce the substance that CEA tests for.  For CEA to go up the…

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MRI scan today....test anxeity

Posted on April 16, 2011 at 6:21am 3 Comments

I'm off to Duke for an MRI in an hour.  Who knows why Its scheduled for Saturday morning, I guess they are trying to milk all the money they can out of the machine.   The test may clear up what has been causing my right side abdominal pain.  At first I thought it was mets or adheasions, then I saw the last MRI found gall stones and that made sence.  Maybe the mystery will be solved, the pain has been less severe and less frequent.  I don't see the doctor for two weeks so I guess I will go…

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Non Colon Post -There are challanges other then cancer

Posted on April 11, 2011 at 9:00pm 2 Comments

   It's my wife's turn with the insurance card.  She slipped and fell in the kitchen on Friday and broke both of her wrists.   One of them had a plate and screws in it from 5 years ago.  We both have Osteoprosis. This time she managed to bend the plate and strip out screws.  The Ortho  doctor was so impressed she showed me the x-rays.   She said she had only seen one other case of bending a plate without breaking the bone at a location above or below the plate and that person was an…

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Guide to Being an Assertive Cancer Patient!

Posted on April 10, 2011 at 6:04pm 2 Comments

So, what is an expert patient?

Expert patients:

- know the quality of their lives is primarily up to them

- believe they can exert significant control over their lives

- are determined to live a healthy life despite their chronic condition

- are realistic about the impact of their disease

- have worked out what services exist and utilize those services appropriately.

* Expert patients blogs:

- have a sense of audience that goes beyond family and…

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Comment Wall (74 comments)

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Join My CCA Support

At 9:32pm on February 27, 2014, fapsurvivor said…

Another computer guy!!!  AWESOME!!!

I'm a UNIX/LINUX dude, what about you?

At 2:46pm on January 12, 2014, Joan Cornbleet said…

HI John

This is Joanie back.   I sent you a message about CEA.

My CEA went form 2.9 to 3.4

I do have a new lab so I don't know if that plays a part.

MY new doctor didn't say much about it.

When I left the office, the nurse said to me a curious statement.   She said "Is doctor _____ taking good care of you?    that was unusual I think for her to ask me that question. 

The doctor said the most important thing is for me to do the next colonoscopy.

Please say a prayer for me.

WArmly

Joanie

At 11:10pm on March 17, 2013, Rick R said…

Hi John,

Thanks for the friend request and it's my pleasure to help whereever I can.  After all we're all in this battle together.

 

Fair winds and following seas my friend. 

 

Talk soon,

Rick

At 3:33pm on February 6, 2013, piasillo said…

Hi John. I'm believing for the same for me. I feel great after radiation and chemo. I prefer to wait a few months after radiation to re-image the tumor with CT scan or MRI.

At 4:24pm on November 21, 2012, Karen D Black said…

John  thank you for  your  reply. The reason  i asked  is  ive had pain in the right side liver area  that really did not start until  the end of August -first of September .My radiation oncologist told me i could have right sided chest pain from radiation and i had the radiation  in  May. I will have an MRI and ct scan  Dec.5th  and  see onc  on  the 10th. My last pet scan showed i was in remission so naturally it concerns me that the cancer  might be back. Can y ou think of any other possible reasons for the pain? I  truely  appreciate  your  input  on  this. Thanks-Karen

At 11:02am on November 21, 2012, Karen D Black said…

Hey John, I  remember  you  said  that  radiation  is the  gift that  keeps  on  giving-Could  you  explain  this  to  me  a  little more  in  depth? I  would  really  appreciate  this. Take  Care    Karen

At 9:15am on October 19, 2012, Reegan said…

You share a birthdate with my mother.  She passed several years ago from lymphoma which she battled for many years.  Strong lady-I believe she passed some of that tenacity on to me.  I will certainly need it for my own battle with cancer.  Anyways, Happy Belated Birthday!

At 9:13am on October 19, 2012, Reegan said…

Thank you John.  I joined with hope of finding people who are going through the same things I am.  I am hopeful they can share insight and ideas on how to cope with treatments, side effects, pain, etc.

At 12:04pm on October 9, 2012, Karen D Black said…

John,   "HAPPY  BIRTHDAY  TO  YOU!!   and  "MANY  MANY  MORE. I  hope  you  have  a  fun  filled  day!!    Karen

At 11:06am on October 9, 2012, aprilart said…

Happy Birthday John! I hope it's a great one! Whoot whoot!

 
 
 

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