Puglover
  • Female
  • Lithia, FL
  • United States
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Puglover's Discussions

Bile duct stent

Started this discussion. Last reply by Puglover Jul 6, 2010. 2 Replies

New Phase I Trial & Stereotactic

Started this discussion. Last reply by Hugh Barr May 20, 2010. 2 Replies

Has anyone had stereotactic radiosurgery for small lung mets?

Started this discussion. Last reply by Nancy Butterfield Apr 7, 2010. 8 Replies

 

Puglover's Page

Latest Activity

sue kidera replied to Puglover's discussion Irinotecan hair loss - does it decrease or keep on going?
"I am not sure if I am the woman you are talking about. I did post on this. Been in this cycle for a while. I had the same situation as you where there were "flat" spots where my hair had thinned. I also have thick hair (or did I should…"
Mar 2
Nancy Butterfield replied to Puglover's discussion Irinotecan hair loss - does it decrease or keep on going?
"Just wanted to let you all know that the original post from Puglover was back in 2009. I haven't heard from her in awhile, don't know how she's doing. Thanks for posting here though, it will help someone! Nancy Butterfield Community…"
Feb 28
Karen replied to Puglover's discussion Irinotecan hair loss - does it decrease or keep on going?
"Hi Puglover, I am in the same situation that you are in.  I started Erbitux and irinotecan in November and will be on it indefinitely.  I started losing my hair about 4 weeks into my treatment.  I also had a lot of hair so most people…"
Feb 28
Randy Henniger replied to Puglover's discussion Irinotecan hair loss - does it decrease or keep on going?
"Dear Puglover, Thanks for posting. Here is a link to hair loss search on our discussion forum: http://myccasupport.org/forum/topic/search?q=hair+loss Also, here is a helpful site for chemo side…"
Feb 28
Fannie Tonks replied to Puglover's discussion Irinotecan hair loss - does it decrease or keep on going?
"One of my friend was on chemo and lost her hair but started growing them back just 1 or 2 months after the chemo treatment. Meanwhile she used extensions to hide her hair loss. You too can use such extensions or hair pieces to hide the hair…"
Feb 27
Puglover is now a member of My CCA Support
Aug 19, 2009

Profile Information

Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Patient/Survivor
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 4
Chemotherapy Received
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Other
If you have metastases, please note where
5 small mets in lungs; liver showing no tumors after recent chemoemobolization

Comment Wall (16 comments)

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At 1:42pm on July 2, 2010, Nancy Butterfield said…
Hi Karen,
I sent you an e-mail privately, let me know if you didn't get it.
Nancy
At 8:30am on July 2, 2010, Whidbey Woman said…
Good luck on that trial. I thank God for the advancements they are making it cancer treatment. May this one work for you, thus bringing hope to others!
At 1:11pm on June 25, 2010, Nancy Butterfield said…
Hi Karen,
Just thinking about you and wondering how things are going? I hope you are doing o.k.
Nancy
At 1:16pm on April 8, 2010, Nancy Butterfield said…
Hi Karen,
I just saw your post to Steve - caretaker to his partner. I wanted you to know that his partner passed away in March of 2009. I'm not sure if this is the trial you are talking about, but they are currently recruiting participants:

http://clinicaltrials.gov/ct/show/NCT00975897

Hope this helps, hang in there!

Nancy
At 1:45pm on December 13, 2009, Brett Bass said…
Glad you're doing well too. Great news that your CEA level is down. It's always been a good marker for me as well. The way I look at it, the rash is proof that the chemo is working. So I don't do much to get rid of it. It doesn't bother me too much, unless I happen to catch myself in the mirror when I'm not expecting it. I also am handling it better than any other chemo I've had. Was your RFA done laproscopically? I don't think I can do another open surgery for awhile. Sorry you had such a bad reaction to the pain meds. That's gotta be tough. It was a pretty good trade, seeing as how the tumor is dead?

Good thoughts and no negative waves,
Brett
At 7:07pm on October 15, 2009, Nancy Butterfield said…
Awesome! Let us know how the scans go!
Nancy
At 3:15pm on October 15, 2009, Jeannie Moore said…
Excellent news! Always a good sign to have our CEA drop like that!
fondly, jeannie
At 7:49pm on October 10, 2009, Brett Bass said…
I don't know if they can space them further apart, mine are every week too. Small price to pay, I guess, but it does get tiresome.

No negative waves,
Brett
At 7:47pm on October 10, 2009, Brett Bass said…
I started Camptosar in January, I started Erbitux in June after my latest surgery so I'm taking them both. My Dr. said she has a patient that has been on Erbitux for at least 8 years, I think, so it's a "use it as long as it works" type of thing. Not at all like Oxolyplatin which builds up toxicity and can only be used for a while. So far the Erbitux/Camptosar thing is working for me, I hope it works as well for you, and yes, it's about the easiest for me to tolerate.

Good thoughts and no negative waves,
Brett
At 8:19am on September 10, 2009, Brett Bass said…
I'm assuming your "name" means you love the dog, my sister-in-law just got a pug puppy last Saturday. I've enver seen a pug as a puppy. He sure is cute! Everyone played with him all day and by the time we got there he was so tired when it was my turn to hold him he fell fast asleep in my lap, they're even cute when they sleep. I played "Nap Police" and wouldn't let anyone play with him until he woke up about an hour later. It was the highlight of my weekend.

Hope things are going good for you, good thoughts,
Brett
 
 
 

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