"I am not sure if I am the woman you are talking about. I did post on this. Been in this cycle for a while. I had the same situation as you where there were "flat" spots where my hair had thinned. I also have thick hair (or did I should…"
"Just wanted to let you all know that the original post from Puglover was back in 2009. I haven't heard from her in awhile, don't know how she's doing.
Thanks for posting here though, it will help someone!
I am in the same situation that you are in. I started Erbitux and irinotecan in November and will be on it indefinitely. I started losing my hair about 4 weeks into my treatment. I also had a lot of hair so most people…"
"One of my friend was on chemo and lost her hair but started growing them back just 1 or 2 months after the chemo treatment. Meanwhile she used extensions to hide her hair loss. You too can use such extensions or hair pieces to hide the hair…"
I just saw your post to Steve - caretaker to his partner. I wanted you to know that his partner passed away in March of 2009. I'm not sure if this is the trial you are talking about, but they are currently recruiting participants:
Glad you're doing well too. Great news that your CEA level is down. It's always been a good marker for me as well. The way I look at it, the rash is proof that the chemo is working. So I don't do much to get rid of it. It doesn't bother me too much, unless I happen to catch myself in the mirror when I'm not expecting it. I also am handling it better than any other chemo I've had. Was your RFA done laproscopically? I don't think I can do another open surgery for awhile. Sorry you had such a bad reaction to the pain meds. That's gotta be tough. It was a pretty good trade, seeing as how the tumor is dead?
I started Camptosar in January, I started Erbitux in June after my latest surgery so I'm taking them both. My Dr. said she has a patient that has been on Erbitux for at least 8 years, I think, so it's a "use it as long as it works" type of thing. Not at all like Oxolyplatin which builds up toxicity and can only be used for a while. So far the Erbitux/Camptosar thing is working for me, I hope it works as well for you, and yes, it's about the easiest for me to tolerate.
I'm assuming your "name" means you love the dog, my sister-in-law just got a pug puppy last Saturday. I've enver seen a pug as a puppy. He sure is cute! Everyone played with him all day and by the time we got there he was so tired when it was my turn to hold him he fell fast asleep in my lap, they're even cute when they sleep. I played "Nap Police" and wouldn't let anyone play with him until he woke up about an hour later. It was the highlight of my weekend.
Hope things are going good for you, good thoughts,