Randy Henniger
  • 59, Male
  • So Lake Tahoe, CA
  • United States
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Profile Information

First Name
Last Name
South Lake Tahoe
US State or Territory
How did you hear about My CCA Support [select all that apply]
Colon Cancer Alliance Website
Race and Ethnicity [select only one]
White (non-Hispanic)
What is your connection to colorectal cancer [select only one]
Were you or your loved one diagnosed within the last 6 months with colorectal cancer [select only one]
Type of Cancer [select only one]
Colon Cancer
What stage at diagnosed [select only one]
Stage 3
Chemotherapy Received
About Me
28 year colon cancer (Stage III) survivor, and ostomate. I had surgery to remove the rectal tumor along with the rectum and lower portion of my colon, resulting in a permanent colostomy. The treatments caused ED, which we resolved with a penile implant in 1987. Radiation treatments (no chemo for Stage III at the time) caused bladder damage resulting in frequent UTIs and neuropathy in my foot. Don't let that or living with an ostomy get in my way of living life to the MAX with joy and gratitude for every day I'm still on the planet. Loving my wife and sons, family and friends. Surfing, biking, hiking, swimming, kayaking, rafting, doing Bikram hot Yoga daily.

I am 58 years young, surfer and husband for 30+ years to my incredible wife, Patricia. We have two sons, Jeff (30) and Josh (28). We live in Northern California near Sacramento in Folsom. Our son, Josh is a Purple Heart recipient from his service in the Army in Iraq in 2005. Jeff is a computer/internet wiz and lives in the San Francisco area.

In January 2014, I had surgery for a second ostomy (urostomy) to resolve issues caused by the pelvic radiation I experienced during treatment in 1986. More at www.activeostomates.com

I have been cancer free for 28 years and most enjoy sharing my experience of hope and understanding with others on their path to beating cancer and enjoying our survivorship. TOGETHER WE CAN BEAT CANCER!

Randy Henniger's Blog

Perineal Urethrostomy needed to eliminate chronic UTIs

Posted on October 29, 2013 at 1:22pm 5 Comments

This is the surgery I had last week at UCSF by Dr. Breyer and Dr. Sanford. Surgery went well, was released the same day. Hoping to be able to void my bladder completely after the catheter is removed this Friday. Will post…


Doing well after surgery

Posted on October 28, 2013 at 1:43pm 2 Comments

Thanks to everyone for the prayers, emails and FB posts. The surgery went well and I'm home recovering.…


Two bag ostomate!

Posted on September 30, 2013 at 11:08am 0 Comments

Supre-pubic diversion surgery on Friday to let my urethra…


Latest Activity

barb and Randy Henniger are now friends
Nov 13
Randy Henniger replied to Harry's discussion YALE in New Haven CT
"Harry, We have 27 members in CT...here's a…"
May 30
Randy Henniger left a comment for Jose Manuel Arteaga
"Welcome Jose, I am also a rectal cancer survivor...for 28 years with a permanent colostomy.…"
May 29
Randy Henniger left a comment for Jon Buck
"Welcome, Jon! I know Jeannie will get a buddy for you. She's the best! Be WELL! Randy, 28 year…"
May 28

Colostomy or not to Colostomy? It's an easy choice!!!

I thought it would be good to post that having a colostomy is really NO BIG DEAL. It is certainly better to be living with a colostomy than to die without one.
What I mean to say is that if you are facing a choice of a treatment program that has less chance of survival by keeping your original plumbing, don't be stupid! Take the route that has the best chance of long term survival. If that includes the removal of your rectum and leaves you with a permanent colostomy, then do it!
I have lived without limitations for 25 years with a permanent colostomy, and with a little planning and with the right ostomy supplies, a reasonable diet and regular exercise, I live a completely NORMAL life.
I surf, I've hiked to the top of Mt Whitney (twice!), I've SCUBA dived, I do yoga, I enjoy intimacy with my lovely wife of 33 years, we've raised two fine sons which included a lot of wresting and physical activity.
Would I prefer to have my original plumbing, of course, but not at the cost of my life or chronic pain and discomfort.
If a colostomy is the best way for you to beat cancer and have good colon and overall health, I highly suggest you do it. Get a good ostomy nurse, try all the products on the market from Convatec (my favorite), Hollister and others. Take charge of fight to beat cancer and to make the best of whatever amount of time God gives us on this planet.
Stay strong!Randy

Comment Wall (329 comments)

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At 9:03pm on May 20, 2014, Sheridan Folger said…

Thanks for the welcome Randy

At 2:05am on May 20, 2014, JohnLiu001 said…

Thank you Randy!

At 5:42pm on May 16, 2014, Lee said…

Hello Randy,

We had talked on the phone last Friday, May 9 about 3p.m. when I had called the helpline.  I was talking on my cellphone and we may of had a bad connection and you thought my name was Ray.  I  mentioned that I was 48 years old, been at stage 3 since being diagnosed in Dec., 2011 and I may have progressed to Stage 4 according to the findings (positive lymph node in abdominal region) on the PET scan, I had 3 weeks ago and I was going to be meeting with my surgical oncologist at UAMS in Little Rock,AR on May 28 to discuss my options.  You had told me about the HIPEC procedure and other treatments and sent me links.  I read some about HIPEC and it sounds more invasive than the surgeries I had, the closest hospital offering it was in Dallas and I am currently on Arkansas Medicaid through Obamacare.  I may consider it in the future if I have further problems.  If my cancer is only confined to the 1 lymph node, I'll probably have it removed, do chemo and pray for the best outcome.  Jeannie Moore called me Tuesday and she gave me more info about metastatic colon cancer, treatments, and also the buddy system.  All the books I've read about colon cancer were more than 5 years old and some of the information may be outdated and it seems like the outlook and prognosis for Stage 4 Survivors is improving all the time.  I appreciate all the information everyone has given me so far and this is a really great online community.  I look forward to being a contributing member in the weeks, months, and years ahead.  I have been a paricipant in a local cancer support group in Hot Springs,AR for the last year which has been good but doesn't offer a lot of specific info pertaining to colon cancer and Lynch Syndrome.                                             

Thank You, 



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