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I made it through 7 treatments of Avastin/Xeloda and that seemed to keep things from growing out of control. I finished my last treatment January 2010. My oncologist at West Clinic referred me to MD Anderson because he felt surgery might be an option since they have some of the best colorectal surgeons there. I had a week of tests including, Pet, CAT, and MRI. Results showed that my cancer had spread to the vaginal apex (again) (I had a hysterectomy in 2007 when the cancer had returned after my resection in 2004 ) and I had a vaginal resection then. The cancer returned to the apex and at the rectosigmoid junction which was where the bottom reconnection was done of my colon. In addition I have the two nodules in my lungs and they although stable are still there. MD Anderson was great and very detailed and thorough. Surgeon I talked to was Dr. Skibber and he said surgery was doable, resection, with temporary ilestomy and removal of cancer. However that would be after 6 weeks of rad/chemo 5 days a week then wait 6 weeks and have that surgery. I meet with a Thorasic Surgeon Dr. Swisher and he said the lung surger to remove the two nodules would be done in 2 seperate surgeries. Dr. Skibber was a delightful person and he told me that the surgery is doable but that I was ok for now and really needed to make a decision on that myself. In otherwords he wasn't gung ho on doing the surgery but it was doable but because of the intense chemo radiation before the surgery then the 3 surgeries planned afterward that was alot. I prayed all night about making the right decision, ie.,what if I go through all this and it still doesn't get rid of the cancer. Will I have spent months in Houston away from my loved ones and suffering for nothing and my quality of life be poor and I am going to die anyway?? I know thse are questions everyone has to ask and I prayed alot the night before that GOD would pleae give me some guidance on what to do. The next morning as we were packing up to go , MD Anderson called an said after their consult with my entire team the night before, a radiologist pointed out a spot in my omentum that needed to be biopsied and that the outcome of that biopsy would determine whether surgery was even an option anynore. Well was that my sign from GOD??? I had the biopsy done yesterday and based on the outcome of that biopsy, we will take another turn in the fork of the cancer treatment road. All I can say is GOD has the plan for our lives. I am ok whatever that plan is and I'm not afraid to die and I'm not giving up but accepting whatever his plan is and have to just keep praying for guidance. I have been a very lucky person in that I have lived with cancer for 6 years now and I have had a good quality of life even through chemo I have been able to work and spend time with my family. What is ahead is something that I don't worry about anymore. I have a peace within me that I cannot explain. Because God keeps reminding me that Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.( Matthew 6:34 )Who of you by worrying can add a single hour to his life? ( Matthew 6:27 ) (TWO OF THE BEST BIBL VERSES FOR ANXIETY).. I AM HERE TO TESTIFY ABOUT THE MERCY OF OUR GOD. HE DOESN'T PROMISE TO HEAL US ALL NOW HERE ON EARTH, BUT HE DOES PROMISE WE WILL ALL BE HEALED IN HEAVEN. CANCER WILL NOT TAKE MY FAITH.
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My tumor marker is now down to 12 and all my tumors have shrunk alot. I go for a c-scan on 8/27 to see how good I'm doing. We were handed a bad hand of cards. I just don't want to suffer
Dave from New Jersey
thinking of you,
jeannie
I am so glad you are finding some relief. I am praying for you.
Catherine
I still have a lot of pain and I am on a pain patch and immediate release morphine to get me through a day. My abdomen feels like it is one huge knot and I just think if it was all scooped out I would find relief, this is from the radiation and it caused my reconstructed vagina to collapse, which was what Dr. Smiley was planning to happen, but I am still dealing with granulation issues and vaginal pain, the skin is extremely tender and will bleed with any wrong way of sitting or bump when driving.
The reality is this is a life saving procedure but it is an extremely long recovery. I am at almost two years and I still cannot sit, stand, walk for very long time and I get off the couch worse than an 80 year old woman, I think I have arthritis in my back also from this surgery, who knows what all I have to deal with, I now have GOUT, and got a BOIL thanks to the chemo side effects. i was on your original regiment so I cannot help with the new stuff. Please shoot me a note if you have any specific questions.
Melinda
I saw Dr. Smiley at West Clinic in Germantown. I had an entire pelvic exeneration in September 2008. I was in open surgery with 5 surgeons for 15 hours and at one time 8 were in the operating room assisting. It was a grueling surgery and it saved my life. I was confident in my team, Dr. Monroe was my GI surgeon, my urologist Dr. Conrad is one of the best in the midsouth, but there is a new one that the team worked with on two other ladies that were able to have the jpouch instead of the ileo conduit. Dr. Quigley was my plastic surgeon and did the vaginal flap. I then followed up with chemo, chemo/radiation. and chemo again. I just had my first two month check and CT scan and if I get no call by today then I am in the all clear for this round. My mass was huge in my pelvic area. I did not have the lung mets, but it sounds like it all is operable at this point. I am interested to know if Cyberknife has been discussed for the lung mets? If they are in a good location then I would think it would be a good thing to ask about.
I am a little less than two years out from recovery and my body is operating at about 30%, I still cannot lift anything over 5 lbs since I am at an extremely high risk to hernias due to scar tissue. I was in the hospital icu until for almost 2 weeks and on the surgical floor for an additional 2.5 weeks. Other's spent less time but my inicision had to be dehisced my my surgeon due to it not healing, I went home with a wound vac in a post op state. They had got some patients on the floor that had some kind of blood disease that they could not identify and was worried about how contagious it was, so I was sent home a week earlier from the hospital due to my parents willing to take me on and have home healthcare in the home 5 days a week. I was like that until December, then I finally started doing a little better and made up upstairs to my bedroom for the first time in 4 months. I still have problems with sitting for long periods.
I agree that that surgery sounds like a huge challenge. We know recovering from any surgery is tough, but this one sounds like you'd be in recovery for a long time.
I'd be curious to see what a radiologist has to offer you treatment wise.
thinking of you,
jeannie
>Omentectomy refers to the surgical removal of the omentum, a relatively simple procedure with no major side effects, that is performed in cases where there may be spread of cancerous tissue into the omentum>>
Do we know what treatment regime they are putting you on?
thinking of you - time to regroup a bit, absorb this and "get back on that horse" :)
jeannie
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