Hi Vanessa, I saw your latest photos of your welts and peeling hands. My heart is heavy with sadness that all of this is happening to you and has been happening to you for a long period of time. I will say and I have said it before you have a heart of gold and the drive that is second to none. There just has to be relief around the corner for you, there has to be. I am looking for good news after you talk to your Onc on Wed. I care about you alot Vanessa and love you like a sister. Take care:). Michael
Hi Vanessa, Here are some ideas for when you have no appetite due to chemo. There are chemical methods, like medical marijuana, the rx equivalent Marinol, and I believe Megace is another one. Steroids are also used to increase appetite (Decadron). Practical ways are different, of course. Eat small snacks more frequently instead of big meals. Eat mild foods. Notice what things appeal to you - sweet, salty, crunchy, etc, and get that into the foods you eat. If you like sweet, go for sweet potatoes, yams, apples, sweet bell peppers, cinnamon toast, you get the idea. Chicken is a good protein to go with all those, maybe not the cinnamon toast! If you're liking salty, go for white potatoes with veggies on them, like stuffed potatoes. Go for protein like maybe pork, with a salty kind of sauce. Or Chinese food!
Whatever you can eat that doesn't make you gag. I know how you can cook something, and just the smell makes you not want to eat it. I know how you can think something will be perfect, and one bite in the mouth and all your senses go on red alert, shouting 'no no no!' Then there's no WAY you can eat that thing.
Maybe a new cookbook, like "One Bite At A Time", made for cancer patients and their caregivers/support people. There might be ideas for new things that will tickle your palate the right way!!
Let me know if this is way off base, and your problem isn't related to this at all. I might have other ideas.
Thank you so much for the information. I had my uterus removed last year because of endometriosis, they removed my ovaries at the same time they took part of my colon. You are so young, I wish you a speedy recovery. My daughter is 25 and they had to remove three polyps from her two of the three were precancerous. They told her to have her children soon, and as soon as she is done having children, they want to do a complete hysterectomy on her as well.
well that is good they are not concerned about the fainting problems. However, if the nurse practioner doesn't listen well to you, then be sure you talk to your oncologist about your extreme fatigue because she would be the one to make adjustments to your chemo if it is needed. Communication is key between you and your oncologist. Hope you are doing better now.
Hi Vanessa, I didn't want to 'win', I just wanted you to be careful! I'm glad it worked out advantageous to stay home, and I'm really sorry you're having more allergy problems.
I think our white count tends to be lowest in the few days before we have chemo again. But check with your doc to be sure. Those are the days you should plan on NOT being social, and secluding yourself from crowds somewhat. Anyway, chemo is hard enough without getting sick because of low white counts.
We just want you to make it through easily, and without incidents. Remember, YOU are your number one priority now, it's the way it has to be.
Glad you are feeling better Vanessa. Plenty of rest, hydration and good food will surely make you feel better. You are one heck of a warrior and I am proud that I know you and that you are my friend. Take care Vanessa. My best to you and your family. Your friend. Michael
Hi Vanessa, how is gurgi. I know he has been bad and hopefully he is under control. I hope your weekend went well and that you are feeling much much better. How is your appetite. I dont know if you have chemo this week remember the bad effects of the steriods - so that terrible day when you were sick doesnthappen again. Stay strong my friend I am thinking about you:).
just got my disconect today as well, this was my second session. I know what your going through. I was so sick today they gave me a bag of fluids after my disconnect to make me feel better. It helped a little. I just woke up from a long nap, feel somewhat better but not great or myself by any means.The cold sensation in my fingers is the worst since I statred this, wearing gloves for most everything. How are you feeling now?
Vanessa, by the time you read this your pump is off and hopefully you are feeling much better. Today was a very hard day for you. You had alot of things going on in you all at once and it was scary to me. Our bodies are a miracle but at times they are a pain. I really pray this email finds you doing much better. If and when you have time just drop me anote. I want to know how you are feeling. God Bless you Vanessa and sleep well. Michael
Hi Vanesssa: I know you had a very hard day today and I pray you were able to sleep and your stomach settled down. These treatments are not easy and they produce so many side effects :(. I am concerned about you and pray that all is well with you. On a side note I hope your husband is feeling better as well. God bless you Vanessa and your family :). Sincerely Michael
Hi Vanessa: I read your post and it seems like your chemo was tolerable with nueropathy. The sensativity to hot and cold was always a problem to me. I use to wear gloves when I went into the refrigerator and could only drink room temperature drinks or my throat went into spasms. I had taken chemo on Thursday Avastin, Erbitux, theroid and liquid benedryl. By no means as strong as your cocktail. It seems like this never ends but the beautiful thing about all of this is by Gods grace we are alive and can continue or experiences and listen to each other. Thats a wonderful thing. You and your family have a very funtastic weeked and get your well needed rest. Take care my friend. Michael